Systematic review: the effect on surrogates of making treatment decisions for others

D Wendler, A Rid - Annals of internal medicine, 2011 - acpjournals.org
Background: Clinical practice relies on surrogates to make or help to make treatment
decisions for incapacitated adults; however, the effect of this practice on surrogates has not …

Good end-of-life care in nursing home according to the family carers' perspective: A systematic review of qualitative findings

S Gonella, I Basso, MG De Marinis… - Palliative …, 2019 - journals.sagepub.com
Background: Nursing homes are becoming a common site where delivering end-of-life care
for older adults. They often represent the junction between the curative and the palliative …

They know!—Do they? A qualitative study of residents and relatives views on advance care planning, end-of-life care, and decision-making in nursing homes

G Bollig, E Gjengedal, JH Rosland - Palliative medicine, 2016 - journals.sagepub.com
Background: Residents living in long-term care facilities are a vulnerable population. For
many residents, a nursing home is their place of death. Palliative care and end-of-life …

Understanding provision of chemotherapy to patients with end stage cancer: qualitative interview study

HM Buiting, ML Rurup, H Wijsbek, L van Zuylen… - Bmj, 2011 - bmj.com
Objective To examine health professionals' experiences of and attitudes towards the
provision of chemotherapy to patients with end stage cancer. Design Purposive, qualitative …

Nothing to complain about? Residents' and relatives' views on a “good life” and ethical challenges in nursing homes

G Bollig, E Gjengedal, JH Rosland - Nursing ethics, 2016 - journals.sagepub.com
Background: Nursing home residents are a vulnerable population. Most of them suffer from
multi-morbidity, while many have cognitive impairment or dementia and need care around …

Making decisions for hospitalized older adults: ethical factors considered by family surrogates

J Fritsch, S Petronio, PR Helft… - The Journal of clinical …, 2013 - journals.uchicago.edu
Background Hospitalized older adults frequently have impaired cognition and must rely on
surrogates to make major medical decisions. Ethical standards for surrogate decision …

“I just think that we should be informed” a qualitative study of family involvement in advance care planning in nursing homes

L Thoresen, L Lillemoen - BMC medical ethics, 2016 - Springer
Background As part of the research project “End-of-life Communication in Nursing Homes.
Patient Preferences and Participation”, we have studied how Advance Care Planning (ACP) …

End-of-life expectations and experiences among nursing home patients and their relatives—A synthesis of qualitative studies

A Fosse, MA Schaufel, S Ruths, K Malterud - Patient education and …, 2014 - Elsevier
Objective Synthesize research about patients' and relatives' expectations and experiences
on how doctors can improve end-of-life care in nursing homes. Methods We systematically …

Experiences and involvement of family members in transfer decisions from nursing home to hospital: a systematic review of qualitative research

A Pulst, AM Fassmer, G Schmiemann - BMC geriatrics, 2019 - Springer
Background Nursing home residents (NHR) are characterized by increasing frailty,
multimorbidity and care dependency. These conditions result in frequent hospital transfers …

How family caregivers' medical and moral assumptions influence decision making for patients in the vegetative state: a qualitative interview study

K Kuehlmeyer, GD Borasio, RJ Jox - Journal of Medical Ethics, 2012 - jme.bmj.com
Background Decisions on limiting life-sustaining treatment for patients in the vegetative state
(VS) are emotionally and morally challenging. In Germany, doctors have to discuss, together …