The experiences, priorities, and perceptions of informal caregivers of people with dementia in nursing homes: A scoping review

AE Harper, L Terhorst, M Moscirella, RL Turner… - …, 2021 - journals.sagepub.com
Background Person-centered care has been shown to increase desired outcomes for
people with dementia, yet informal caregivers' dissatisfaction with care is often reported. For …

[HTML][HTML] Provincial legislative and regulatory standards for pain assessment and management in long-term care homes: a scoping review and in-depth case analysis

NL Gallant, A Peckham, G Marchildon… - BMC geriatrics, 2020 - Springer
Abstract Background Among Canadian residents living in long-term care (LTC) facilities, and
especially among those with limited ability to communicate due to dementia, pain remains …

What do relatives value most in end-of-life care for people with dementia?

S Bolt, J van der Steen, J Schols… - … journal of palliative …, 2019 - magonlinelibrary.com
Background: End-of-life care for older people with dementia is often sub-optimal.
Understanding the experiences of the relatives involved in the care of the person with …

[HTML][HTML] Developing an applied model for making decisions towards the end of life about care for someone with dementia

N Davies, T De Souza, G Rait, J Meehan… - PLoS One, 2021 - journals.plos.org
Background Many people with dementia reach the end-of-life without an advance care plan.
Many are not ready to have conversations about end-of-life, and decision-making is left to …

[HTML][HTML] Improving end-of-life care for people with dementia in LTC homes during the COVID-19 pandemic and beyond

S Kaasalainen, L Mccleary, S Vellani… - Canadian Geriatrics …, 2021 - ncbi.nlm.nih.gov
COVID-19 pandemic has resulted in a significant increase in deaths in long-term care
homes (LTCH). People with dementia living in LTCHs represent one of the most frail and …

[HTML][HTML] Cross-cultural conceptualization of a good end of life with dementia: a qualitative study

M Nishimura, KH Dening, EL Sampson… - BMC Palliative Care, 2022 - Springer
Background Research on the nature of a “good death” has mostly focused on dying with
cancer and other life-limiting diseases, but less so on dementia. Conceptualizing common …

The Involvement of caregivers in the end-of-life care of an older adult living in a long-term care home: a qualitative case study with nurses and relatives

I Auclair, A Bourbonnais - Canadian Journal of Nursing …, 2024 - journals.sagepub.com
Background A key role of nurses working in long-term care homes (LTCHs) is to promote the
involvement of care partners in end-of-life (EOL) care. However, studies on the involvement …

Social networks, social capital and end-of-life care for people with dementia: a realist review

JM Sawyer, L Sallnow, N Kupeli, P Stone… - BMJ open, 2019 - bmjopen.bmj.com
Objectives (1) To develop an understanding of how social capital may be conceptualised
within the context of end-of-life care and how it can influence outcomes for people with …

Structures, tensions, and processes shaping long-term care home staff's role in end of life decision-making for residents with dementia

N Sutherland - Journal of Aging Studies, 2020 - Elsevier
Although long-term care (LTC) home staff of nurses and personal support workers spend the
most time providing direct care, their role in end of life decision-making for residents with …

[HTML][HTML] Just and inclusive end-of-life decision-making for long-term care home residents with dementia: a qualitative study protocol

N Sutherland, O St. Amant, S Dupuis, P Kontos… - BMC Palliative Care, 2022 - Springer
Background Many people living with dementia eventually require care services and spend
the remainder of their lives in long-term care (LTC) homes. Yet, many residents with …