[HTML][HTML] Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2–7 across 14 countries
International EA-QoL Group - Frontiers in Pediatrics, 2023 - frontiersin.org
Background Esophageal atresia (EA) is a rare congenital anomaly characterized by a
discontinuity of the esophagus. Following surgical repair, survival rates have improved …
discontinuity of the esophagus. Following surgical repair, survival rates have improved …
[HTML][HTML] A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering …
OKC Spivack, M Dellenmark-Blom… - European Journal of …, 2024 - thieme-connect.com
Introduction Patient-reported outcome measures (PROMs) can be employed in both
research and clinical care to enhance our understanding of outcomes that matter to patients …
research and clinical care to enhance our understanding of outcomes that matter to patients …
[HTML][HTML] Transitioning through adversity: Maternal experiences and post-traumatic growth in the context of infants diagnosed with esophageal atresia-A …
S Gong, C Tang, X Wang, J Yan, Q Yu… - Journal of Pediatric …, 2023 - Elsevier
Purpose This study aimed to elucidate the experiences and growth trajectories of mothers
who have infants with esophageal atresia, which would contribute to our understanding of …
who have infants with esophageal atresia, which would contribute to our understanding of …
[HTML][HTML] An International Collaborative Initiative to Establish a Quality-of-Life Questionnaire for Children and Adolescents with Repair of Esophageal Atresia in 14 …
International EA-QOL Group - Children, 2024 - mdpi.com
The EA-QOL questionnaire measures quality-of-life specifically for children born with
esophageal atresia (EA) aged 8–18 and was completed in Sweden and Germany. This …
esophageal atresia (EA) aged 8–18 and was completed in Sweden and Germany. This …
Disease-specific quality of life as part of the long-term follow-up for children born with esophageal atresia in an academic unit in South Africa—a pilot study
C de Vos, M Dellenmark-Blom… - Diseases of the …, 2024 - academic.oup.com
As neonatal mortality rates have decreased in esophageal atresia (EA), there is a growing
focus on quality of life (QoL) in these children. No study from Africa has reported on this …
focus on quality of life (QoL) in these children. No study from Africa has reported on this …
[HTML][HTML] Health-related quality of life in children after surgical repair of esophageal atresia: a cross-sectional study in China
Z Feng, H Zhu, W He, X Peng, R Gao, Y Tian… - Frontiers in …, 2024 - frontiersin.org
Objective To investigate health-related quality of life (HRQOL) in patients after surgical
repair for esophageal atresia (EA) and identify its potential influencing factors. Methods A …
repair for esophageal atresia (EA) and identify its potential influencing factors. Methods A …
Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2–7 across 14 countries
TT König, M Dellenmark-Blom - 2023 - discovery.ucl.ac.uk
Background: Esophageal atresia (EA) is a rare congenital anomaly characterized by a
discontinuity of the esophagus. Following surgical repair, survival rates have improved …
discontinuity of the esophagus. Following surgical repair, survival rates have improved …
Health-Related Quality of Life in Children after Surgical Repair of Esophageal Atresia: A Single Tertiary Center Cross-sectional Study
Z Feng, H Zhu, X Peng, R Gao, W He, Y Tian, X Cao… - 2023 - researchsquare.com
Objective To investigate health-related quality of life (HRQOL) of in postoperative
esophageal atresia (EA) patients and to identify its potential influencing factors. Methods A …
esophageal atresia (EA) patients and to identify its potential influencing factors. Methods A …