“Good-parent beliefs”: research, concept, and clinical practice
MS Weaver, T October, C Feudtner, PS Hinds - Pediatrics, 2020 - publications.aap.org
Parents of ill children have willingly identified their personal beliefs about what they should
do or focus on to fulfill their own internal definition of being a good parent for their child. This …
do or focus on to fulfill their own internal definition of being a good parent for their child. This …
Communication during childhood cancer: systematic review of patient perspectives
B Lin, T Gutman, CS Hanson, A Ju, K Manera… - Cancer, 2020 - Wiley Online Library
Effective communication is challenging in childhood cancer, where decisions carry
unpredictable and life‐threatening implications. We aimed to describe patients' experiences …
unpredictable and life‐threatening implications. We aimed to describe patients' experiences …
Supportive care in pediatric oncology: Opportunities and future directions
Simple Summary Supportive care is an essential component of excellent cancer care. It
refers to the optimization of outcomes through supportive practices such as infection …
refers to the optimization of outcomes through supportive practices such as infection …
Pediatric palliative oncology: the state of the science and art of caring for children with cancer
Pediatric palliative oncology: the state of the science and... : Current Opinion in Pediatrics
Pediatric palliative oncology: the state of the science and art of caring for children with cancer …
Pediatric palliative oncology: the state of the science and art of caring for children with cancer …
Triadic communication with teenagers and young adults with cancer: a systematic literature review–'make me feel like I'm not the third person'
DJ Critoph, RM Taylor, A Spathis, R Duschinsky… - BMJ open, 2024 - bmjopen.bmj.com
Objectives Clinical communication needs of teenagers and young adults with cancer
(TYACs) are increasingly recognised to differ significantly from younger children and older …
(TYACs) are increasingly recognised to differ significantly from younger children and older …
Facilitators and barriers to adherence to medical recommendations among adolescents with cancer: A systematic review
A Salvador, SA Mansuklal, M Moura… - Journal of Child …, 2023 - journals.sagepub.com
We aimed to systematically review barriers/facilitators of adherence among adolescents with
cancer (aged 10–24 years), following a comprehensive approach to adherence that goes …
cancer (aged 10–24 years), following a comprehensive approach to adherence that goes …
The role of grandparents of children with cancer in the hospital
LB Dias, AMC Mendes-Castillo - Revista brasileira de enfermagem, 2021 - SciELO Brasil
Objective: To understand the role of grandparents of hospitalized children with cancer.
Methods: In a qualitative study, we interviewed eleven grandparents of children with cancer …
Methods: In a qualitative study, we interviewed eleven grandparents of children with cancer …
Factors affecting adolescents' willingness to communicate symptoms during cancer treatment: a systematic review from the children's oncology group
CA McLaughlin, K Gordon, J Hoag… - Journal of adolescent …, 2019 - liebertpub.com
The purpose of this systematic review is to (1) synthesize evidence facilitators and barriers
affecting adolescent willingness to communicate symptoms to health care providers (HCPs) …
affecting adolescent willingness to communicate symptoms to health care providers (HCPs) …
How young adults with sickle cell disease define “being a good patient” in the adult healthcare system
C Nwora, EJ Prince, L Pugh, MS Weaver… - Pediatric Blood & …, 2024 - Wiley Online Library
Background Young adulthood brings new challenges for managing sickle cell disease.
There are fewer adult specialists, sickle cell disease morbidities accumulate, and mortality …
There are fewer adult specialists, sickle cell disease morbidities accumulate, and mortality …
[HTML][HTML] Spirituality in adolescent patients
MS Weaver, D Wratchford - Annals of palliative medicine, 2017 - apm.amegroups.org
Adolescence, the transition between childhood and adulthood, represents a time of rapid
biological, neurocognitive, and psychosocial changes. These changes have important …
biological, neurocognitive, and psychosocial changes. These changes have important …