Background Losing a child tragically impacts the well-being and functioning of parents. With
these effects extending beyond emotional, physical morbidity and compromising self …

Objective: Qualitative research is becoming more common in pediatric palliative care and
end-of-life care. The present article systematically reviews and summarizes qualitative and …

Pediatric palliative care physicians have an ethical duty to care for the families of children
with life-threatening conditions through their illness and bereavement. This duty is …

Abstract Objectives: In Germany since 2007 children with advanced life-limiting diseases are
eligible for Pediatric Palliative Home Care (PPHC), which is provided by newly established …

Purpose: To describe parents' perspectives of health care provider actions that helped or did
not around the time of infant/child's intensive care unit (ICU) death. Semistructured …

Background Despite reported challenges encountered by nurses who provide palliative care
to children, few researchers have examined this phenomenon from the perspective of …

Background: Parents of children with a life-limiting disease have to rely on themselves at
home while adequate paediatric palliative care is lacking. In several countries, paediatric …

Background: Respite services are recommended as an important support for caregivers of
children with life-threatening conditions. However, the benefits of respite have not been …

Purpose: To assess adolescent and young adult siblings' perception of social support prior
to and following the loss of their brother or sister to cancer, 2 to 9 years earlier, and their …

This article presents an original study commissioned by the UK charity, Together for Short
Lives which explored children and young people up to 25 years of age with life …