Effects of health literacy skills, educational attainment, and level of melanoma risk on responses to personalized genomic testing
KA Kaphingst, E Khan, KM White, A Sussman… - Patient education and …, 2021 - Elsevier
Objective Few studies have examined how health literacy impacts responses to genetic
information. Methods We examined this issue among 145 English or Spanish-speaking …
information. Methods We examined this issue among 145 English or Spanish-speaking …
[HTML][HTML] Examining the interrelations among objective and subjective health literacy and numeracy and their associations with health knowledge
EA Waters, C Biddle, KA Kaphingst, E Schofield… - Journal of general …, 2018 - Springer
Background Health literacy and numeracy influence many health-related behaviors and
outcomes. Health literacy and numeracy have been assessed objectively and subjectively …
outcomes. Health literacy and numeracy have been assessed objectively and subjectively …
[HTML][HTML] Development of a plain-language guide for discussing breast cancer genetic counseling and testing with patients with limited health literacy
JAM Van der Giessen, MGEM Ausems… - Supportive Care in …, 2021 - Springer
Purpose Due to limited health literacy and resulting ineffective communication between
healthcare professionals and patients, not all eligible patients are offered breast cancer …
healthcare professionals and patients, not all eligible patients are offered breast cancer …
Considering complexity in the genetic evaluation of dilated cardiomyopathy
E Jordan, RE Hershberger - Heart, 2021 - heart.bmj.com
Dilated cardiomyopathy (DCM) is a cardiovascular disease of genetic aetiology that causes
substantial morbidity and mortality, and presents considerable opportunity for disease …
substantial morbidity and mortality, and presents considerable opportunity for disease …
Communication of genetic information to families with inherited rhythm disorders
Given the dynamic nature of the electrical activity of the heart and ongoing challenges in the
diagnostics of inherited heart rhythm disorders, genetic information can be a vital aspect of …
diagnostics of inherited heart rhythm disorders, genetic information can be a vital aspect of …
[HTML][HTML] Variability in conceptualizations and measurement of genetic literacy
BM Daly, KA Kaphingst - PEC innovation, 2023 - Elsevier
Objective To examine definitions and measures for genetic literacy in the published
literature, and the associations between commonly utilized measures. Methods We …
literature, and the associations between commonly utilized measures. Methods We …
[HTML][HTML] Interest in cancer predisposition testing and carrier screening offered as part of routine healthcare among an ethnically diverse sample of young women
KA Kaphingst, JR Bather, BM Daly… - Frontiers in …, 2022 - frontiersin.org
Sequencing technologies can inform individuals' risks for multiple conditions, supporting
population-level screening approaches. Prior research examining interest in genetic testing …
population-level screening approaches. Prior research examining interest in genetic testing …
Information and health literacy: could there be any impact on health decision-making among adults?—evidence from North America
L Ogbadu-Oladapo, K Bissadu, H Kim… - Journal of Public Health, 2024 - Springer
Purpose In the era of data and information flood—where misinformation, disinformation, and
mal-information are making the rounds—making the right decision can be challenging …
mal-information are making the rounds—making the right decision can be challenging …
[HTML][HTML] Preferences for return of germline genome sequencing results for cancer patients and their genetic relatives in a research setting
Germline genome sequencing (GS) holds great promise for cancer prevention by identifying
cancer risk and guiding prevention strategies, however research evidence is mixed …
cancer risk and guiding prevention strategies, however research evidence is mixed …
A road map for the future: An exploration of attitudes, perceptions, and beliefs among African Americans to tailor health promotion of cancer‐related genetic …
CY Lumpkins, A Philp, KL Nelson… - Journal of genetic …, 2020 - Wiley Online Library
African Americans (AA), the second largest racial/ethnic minority group in the United States
(US), carry the largest mortality burden of cancer compared with other racial/ethnic groups …
(US), carry the largest mortality burden of cancer compared with other racial/ethnic groups …