Effects of health literacy skills, educational attainment, and level of melanoma risk on responses to personalized genomic testing

KA Kaphingst, E Khan, KM White, A Sussman… - Patient education and …, 2021 - Elsevier
Objective Few studies have examined how health literacy impacts responses to genetic
information. Methods We examined this issue among 145 English or Spanish-speaking …

[HTML][HTML] Examining the interrelations among objective and subjective health literacy and numeracy and their associations with health knowledge

EA Waters, C Biddle, KA Kaphingst, E Schofield… - Journal of general …, 2018 - Springer
Background Health literacy and numeracy influence many health-related behaviors and
outcomes. Health literacy and numeracy have been assessed objectively and subjectively …

[HTML][HTML] Development of a plain-language guide for discussing breast cancer genetic counseling and testing with patients with limited health literacy

JAM Van der Giessen, MGEM Ausems… - Supportive Care in …, 2021 - Springer
Purpose Due to limited health literacy and resulting ineffective communication between
healthcare professionals and patients, not all eligible patients are offered breast cancer …

Considering complexity in the genetic evaluation of dilated cardiomyopathy

E Jordan, RE Hershberger - Heart, 2021 - heart.bmj.com
Dilated cardiomyopathy (DCM) is a cardiovascular disease of genetic aetiology that causes
substantial morbidity and mortality, and presents considerable opportunity for disease …

Communication of genetic information to families with inherited rhythm disorders

C Burns, C James, J Ingles - Heart Rhythm, 2018 - Elsevier
Given the dynamic nature of the electrical activity of the heart and ongoing challenges in the
diagnostics of inherited heart rhythm disorders, genetic information can be a vital aspect of …

[HTML][HTML] Variability in conceptualizations and measurement of genetic literacy

BM Daly, KA Kaphingst - PEC innovation, 2023 - Elsevier
Objective To examine definitions and measures for genetic literacy in the published
literature, and the associations between commonly utilized measures. Methods We …

[HTML][HTML] Interest in cancer predisposition testing and carrier screening offered as part of routine healthcare among an ethnically diverse sample of young women

KA Kaphingst, JR Bather, BM Daly… - Frontiers in …, 2022 - frontiersin.org
Sequencing technologies can inform individuals' risks for multiple conditions, supporting
population-level screening approaches. Prior research examining interest in genetic testing …

Information and health literacy: could there be any impact on health decision-making among adults?—evidence from North America

L Ogbadu-Oladapo, K Bissadu, H Kim… - Journal of Public Health, 2024 - Springer
Purpose In the era of data and information flood—where misinformation, disinformation, and
mal-information are making the rounds—making the right decision can be challenging …

[HTML][HTML] Preferences for return of germline genome sequencing results for cancer patients and their genetic relatives in a research setting

MC Best, P Butow, J Savard, C Jacobs… - European Journal of …, 2022 - nature.com
Germline genome sequencing (GS) holds great promise for cancer prevention by identifying
cancer risk and guiding prevention strategies, however research evidence is mixed …

A road map for the future: An exploration of attitudes, perceptions, and beliefs among African Americans to tailor health promotion of cancer‐related genetic …

CY Lumpkins, A Philp, KL Nelson… - Journal of genetic …, 2020 - Wiley Online Library
African Americans (AA), the second largest racial/ethnic minority group in the United States
(US), carry the largest mortality burden of cancer compared with other racial/ethnic groups …