[HTML][HTML] Family communication and results disclosure after germline sequencing: A mixed methods study
Objective Research on family communication of germline genome sequencing (GS) results
(versus of genetic results after targeted genetic testing) is still emerging, yet potentially …
(versus of genetic results after targeted genetic testing) is still emerging, yet potentially …
[HTML][HTML] Genomic knowledge in the context of diagnostic exome sequencing: changes over time, persistent subgroup differences, and associations with psychological …
C Rini, GE Henderson, JP Evans, JS Berg… - Genetics in …, 2020 - Elsevier
Purpose People undergoing diagnostic genome-scale sequencing are expected to have
better psychological outcomes when they can incorporate and act on accurate, relevant …
better psychological outcomes when they can incorporate and act on accurate, relevant …
Developing community-based health education strategies with family history: assessing the association between community resident family history and interest in …
Background Family history (FH) is an underutilized genetically informative tool that can
influence disease prevention and treatment. It is unclear how FH fits into the development of …
influence disease prevention and treatment. It is unclear how FH fits into the development of …
[HTML][HTML] Ethical and public health implications of genetic testing for suicide risk: family and survivor perspectives
Purpose Death from suicide has an estimated heritability of~ 50%. Research may soon
allow calculation of polygenic risk scores (PRS) for suicide death, which could be marketed …
allow calculation of polygenic risk scores (PRS) for suicide death, which could be marketed …
Social Determinants of Self-rated Health: Patient-provider Communication, Social Support, Socioeconomics, and Demographics among Different Ethnic Groups in the …
Z Xiao, J Lee, A Wu - Howard Journal of Communications, 2024 - Taylor & Francis
Grounded in the theory of social determinants of health, this study clarifies the relationship
between social factors and health disparities in the United States. Health disparities as …
between social factors and health disparities in the United States. Health disparities as …
[HTML][HTML] Racial Composition of Social Environments Over the Life Course Using the Pictorial Racial Composition Measure: Development and Validation Study
JR Bather, KA Kaphingst… - JMIR Public Health and …, 2024 - publichealth.jmir.org
Background Studies investigating the impact of racial segregation on health have reported
mixed findings and tended to focus on the racial composition of neighborhoods. These …
mixed findings and tended to focus on the racial composition of neighborhoods. These …
Electronic communication channel use and health information source preferences among Latinos in Northern Manhattan
GC Hillyer, KM Schmitt, M Lizardo, A Reyes… - Journal of community …, 2017 - Springer
Understanding key health concepts is crucial to participation in Precision Medicine
initiatives. In order to assess methods to develop and disseminate a curriculum to educate …
initiatives. In order to assess methods to develop and disseminate a curriculum to educate …
[HTML][HTML] Effect of a health literacy training program for surgical oncologists and specialized nurses on disparities in referral to breast cancer genetic testing
JAM van der Giessen, S van Dulmen, ME Velthuizen… - The Breast, 2021 - Elsevier
Background There is an underuse of genetic testing in breast cancer patients with a lower
level of education, limited health literacy or a migrant background. We aimed to study the …
level of education, limited health literacy or a migrant background. We aimed to study the …
Whole-genome and whole-exome sequencing in pediatric oncology: an assessment of parent and young adult patient knowledge, attitudes, and expectations
JA Oberg, J Ruiz, T Ali-Shaw, KA Schlechtweg… - JCO Precision …, 2018 - ascopubs.org
Purpose The complexity of results generated from whole-genome sequencing (WGS) and
whole-exome sequencing (WES) adds challenges to obtaining informed consent in pediatric …
whole-exome sequencing (WES) adds challenges to obtaining informed consent in pediatric …
The ENGAGE study: a 3-arm randomized hybrid type 1 effectiveness and implementation study of an in-home, collaborative PCP model of remote telegenetic services …
TO Henderson, MA Allen, R Mim, B Egleston… - BMC Health Services …, 2024 - Springer
Background Germline cancer genetic testing has become a standard evidence-based
practice, with established risk reduction and screening guidelines for genetic carriers …
practice, with established risk reduction and screening guidelines for genetic carriers …