Understanding diverse perspectives on genetic research through focus group talk

JL Ridgeway, M Albertie, E Pantoja… - International …, 2019 - journals.sagepub.com
While genetic research (GR) is fueling discoveries in fields like precision medicine, there is a
growing concern that underrepresentation of racial and ethnic populations in GR will limit …

Effect of genomics-related literacy on non-communicable diseases

S Nakamura, H Narimatsu, K Katayama… - Journal of Human …, 2017 - nature.com
Recent progress in genomic research has raised expectations for the development of
personalized preventive medicine, although genomics-related literacy of patients will be …

Picture this: Evaluating the efficacy of genetic counseling visual aids

V Pederson, J Rietzler, A Freeman… - Journal of Genetic …, 2024 - Wiley Online Library
Visual aids have been validated as effective tools for educating patients in a variety of
medical settings. However, research exploring the efficacy and potential benefit of genetic …

Public Attitudes toward Pharmacogenomic Testing and Establishing a Statewide Pharmacogenomics Database in the State of Minnesota

L Zhang, PA Jacobson, ANK Johnson… - Journal of Personalized …, 2022 - mdpi.com
The clinical adoption and implementation of pharmacogenomics (PGx) beyond academic
medical centers remains slow, restricting the general population from benefitting from this …

Community Collaboration in Public Health Genetic Literacy: Co-Designing Educational Resources for Equitable Genomics Research and Practice

J Salunke, G Byfield, SN Powell, D Torres… - medRxiv, 2024 - medrxiv.org
Introduction Unequal representation in genetic and genomic research is due to various
factors including historically inequitable and unjust institutional research practices, potential …

[PDF][PDF] Tara O. Henderson1, Mary Ashley Allen1, Rajia Mim2, Brian Egleston3, Linda Fleisher3, Elena Elkin4, Kevin Oeffinger5, Kevin Krull6, Demetrios Ofidis2, Briana …

S Alston, D Rinehart… - BMC Health …, 2024 - bmchealthservres.biomedcentral …
Background Germline cancer genetic testing has become a standard evidence-based
practice, with established risk reduction and screening guidelines for genetic carriers …

Relationship between genetic knowledge and familial communication of CRC risk and intent to communicate CRCP genetic information: insights from FamilyTalk …

S Makhnoon, DJ Bowen, BH Shirts… - Translational …, 2021 - academic.oup.com
Successful translation of genetic information into patient-centered care and improved
outcomes depends, at least in part, on patients' genetic knowledge. Although genetic …

Knowledge and understanding of pharmacogenomic testing among patients and health care professionals: A scoping review

S Veilleux, M Bouffard - Patient Education and Counseling, 2019 - Elsevier
Objective To support the introduction of pharmacogenomic tests in current practice, this
study identifies the factors associated with a better understanding of the information related …

Impact of numeracy preferences on information needs for genome sequencing results

RD Albrechtsen, MS Goodman, JR Bather… - Patient education and …, 2021 - Elsevier
Objective This study investigated how self-reported numeracy ability and preferences predict
preferences for the amount and types of information provided about genome sequencing …

[HTML][HTML] A Video Intervention to Improve Patient Understanding of Tumor Genomic Testing in Patients with Cancer

D Veney, L Wei, AE Toland, CJ Presley, H Hampel… - medRxiv, 2023 - ncbi.nlm.nih.gov
Background: Tumor genomic testing (TGT) has become standard-of-care for most patients
with advanced/metastatic cancer. Despite established guidelines, patient education prior to …