Impact of numeracy preferences on information needs for genome sequencing results

RD Albrechtsen, MS Goodman, JR Bather… - Patient education and …, 2021 - Elsevier
Objective This study investigated how self-reported numeracy ability and preferences predict
preferences for the amount and types of information provided about genome sequencing …

[HTML][HTML] A Video Intervention to Improve Patient Understanding of Tumor Genomic Testing in Patients with Cancer

D Veney, L Wei, AE Toland, CJ Presley, H Hampel… - medRxiv, 2023 - ncbi.nlm.nih.gov
Background: Tumor genomic testing (TGT) has become standard-of-care for most patients
with advanced/metastatic cancer. Despite established guidelines, patient education prior to …

[HTML][HTML] Predictors of the likelihood that patients with rheumatoid arthritis will communicate information about rheumatoid arthritis risk to relatives: A quantitative …

I Wells, DT Zemedikun, G Simons, RJ Stack… - Patient Education and …, 2023 - Elsevier
First-degree relatives (FDRs) of people with rheumatoid arthritis (RA) are increasingly
recruited to prediction and prevention studies. Access to FDRs is usually via their proband …

The role of psychosocial factors in Black women's self‐efficacy in receiving genetic counseling and testing

H Ding, AL Sutton… - Journal of Genetic …, 2021 - Wiley Online Library
Higher self‐efficacy in receiving genetic counseling and testing (GCT) has been associated
with greater participation in GCT for women at risk of hereditary breast and ovarian cancer …

Examining the role of language competency in genetic testing awareness among adults in the United States

L Passero, S Srinivasan… - Journal of Genetic …, 2022 - Wiley Online Library
Abstract English language competency, as a component of health literacy, is associated with
increased awareness and uptake of health‐related genetic testing. The relationship …

The difference in knowledge and concerns between healthcare professionals and patients about genetic-related issues: A questionnaire-based study

BA Almomani, NA Al-Sawalha, MS Al-Keilani… - Plos one, 2020 - journals.plos.org
Effective adoption of genetics in clinical practice requires the support of and interaction
between the different partners of healthcare system; healthcare professionals (HCPs) and …

Application of the community dialogues method to identify ethical values and priorities related to pharmacogenomics

P Determeyer, J Crowder, E O'Mahony… - …, 2021 - Taylor & Francis
Given the expansion of genetics in medicine, there is a growing need to develop
approaches to engage patients in understanding how genetics affects their health. Various …

Genetic Literacy of pregnant women and their use of prenatal screening and diagnostic tests in Turkey

M Seven, Şİ Paşalak, E Sahin… - Journal of Genetic …, 2019 - Wiley Online Library
This study evaluated how genetic literacy of pregnant women in Turkey affects their use of
prenatal screening and diagnostic tests. As a descriptive cross‐sectional study, a Participant …

Racial segregation and genomics-related knowledge, self-efficacy, perceived importance, and communication among medically underserved patients

JR Bather, MS Goodman, KA Kaphingst - Genetics in Medicine Open, 2024 - Elsevier
Purpose There is limited research on the relationship between structural environmental
factors and genomics-related knowledge, self-efficacy, perceived importance, and …

Exploring genetic literacy in a small hispanic population

K Subasic, R Kronk, A Mantione… - Journal of Transcultural …, 2021 - journals.sagepub.com
Introduction: Genetic literacy recognizes one's ability to gather, understand, and apply
genomic information to make informed health care choices and social decisions. A limited …