Communication during childhood cancer: systematic review of patient perspectives
B Lin, T Gutman, CS Hanson, A Ju, K Manera… - Cancer, 2020 - Wiley Online Library
Effective communication is challenging in childhood cancer, where decisions carry
unpredictable and life‐threatening implications. We aimed to describe patients' experiences …
unpredictable and life‐threatening implications. We aimed to describe patients' experiences …
[HTML][HTML] Chronically ill children's participation and health outcomes in shared decision-making: a scoping review
RO Wijngaarde, I Hein, J Daams… - European Journal of …, 2021 - Springer
Abstract Based on the United Nations Conventions on the Rights of the Child (CRC), it is a
child's right to participate in all matters concerning its wellbeing. Little is known about …
child's right to participate in all matters concerning its wellbeing. Little is known about …
[HTML][HTML] Ten reasons for focusing on the care we provide for family members of critically ill patients with COVID-19
The novel coronavirus has become a worldwide threat and healthcare crisis. Since its
outbreak in China at the end of 2019, the pandemic has affected millions of people and …
outbreak in China at the end of 2019, the pandemic has affected millions of people and …
[HTML][HTML] “People play it down and tell me it can't kill people, but I know people are dying each day”. Children's health literacy relating to a global pandemic (COVID-19); …
The aim of this study was to examine aspects of children's health literacy; the information
sources they were accessing, their information preferences, their perceived understanding …
sources they were accessing, their information preferences, their perceived understanding …
Involving youth with a chronic illness in decision-making: highlighting the role of providers
VA Miller - Pediatrics, 2018 - publications.aap.org
Decision-making is important in the context of pediatric chronic illness because children and
families need to make decisions about burdensome and complex treatments on a regular …
families need to make decisions about burdensome and complex treatments on a regular …
A relational ethics framework for advancing practice with children with complex health care needs and their parents
FA Carnevale, G Teachman… - Comprehensive child and …, 2017 - Taylor & Francis
Children with complex health care needs are an emerging population that commonly
requires long-term supportive services. A growing body of evidence has highlighted that …
requires long-term supportive services. A growing body of evidence has highlighted that …
Understanding autism and its treatment: The child's perspective
Introduction While parents' and professionals' perceptions regarding children with autism
spectrum disorder (ASD) have been studied extensively, limited data regarding the …
spectrum disorder (ASD) have been studied extensively, limited data regarding the …
[HTML][HTML] In the name of the family? Against parents' refusal to disclose prognostic information to children
M Rost, E Mihailov - Medicine, Health Care and Philosophy, 2021 - Springer
Parents frequently attempt to shield their children from distressing prognostic information.
Pediatric oncology providers sometimes follow parental request for non-disclosure of …
Pediatric oncology providers sometimes follow parental request for non-disclosure of …
[HTML][HTML] The conceptual understanding of pediatric palliative care: a Swiss healthcare perspective
Background Health care providers' perception of pediatric palliative care might negatively
influence timely implementation. The aim of the study was to examine understanding of and …
influence timely implementation. The aim of the study was to examine understanding of and …
Implementing Article 12 of the United Nations Convention on the Rights of the Child in health care: a scoping review
Purpose The purpose of this paper is to present the results of a scoping review on the
implementation of Article12 in health care. The scoping review will provide a summary and …
implementation of Article12 in health care. The scoping review will provide a summary and …