Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities in health services; diversity, equity …

VR Byams, JR Baker, C Bailey, NT Connell… - Expert review of …, 2023 - Taylor & Francis
ABSTRACT Background The National Hemophilia Foundation (NHF) conducted extensive
all-stakeholder inherited bleeding disorder (BD) community consultations to inform a …

[HTML][HTML] A need to increase von Willebrand disease awareness: vwdtest. com–A global initiative to help address this gap

FF Corrales-Medina, AB Federici, A Srivastava… - Blood reviews, 2023 - Elsevier
Von Willebrand disease (VWD) is an inherited bleeding disorder caused by quantitative or
qualitative deficiencies in von Willebrand factor (VWF). People with VWD may experience …

What have we learned about the patient's experience of von Willebrand disease? A focus on women

H VanderMeulen, S Arya, S Nersesian, N Philbert… - …, 2022 - ashpublications.org
Von Willebrand disease (VWD), the most common inherited bleeding disorder (IBD),
disproportionately affects females, given the hemostatic challenges they may encounter …

The experiences of menstruation in schools in high income countries: A systematic review and line‐of‐argument synthesis

C Thomas, GJ Melendez‐Torres - Psychology in the Schools, 2024 - Wiley Online Library
Menstruation is a global public health issue with negative discourses of shame,
embarrassment, and disgust. There is growing anecdotal evidence linking negative …

The diagnosis, natural history, and management of von Willebrand disease in women in the age of guidelines

S Kalvehalli Kashinath, PA Kouides - Expert Review of …, 2023 - Taylor & Francis
Introduction Women and girls with bleeding disorders face multiple bleeding challenges
throughout their life. The most significant morbidity and mortality are due to heavy menstrual …

Knowledge and Confidence of Obstetrics and Gynecology Residents in the Evaluation and Management of Heavy Menstrual Bleeding Due to Inherited Bleeding …

PS Huguelet, IA Ayala, L Beaty… - Women's Health …, 2024 - liebertpub.com
Background: Heavy menstrual bleeding (HMB) is common, and 20–30% of patients
presenting with HMB are diagnosed with an inherited bleeding disorder (IBD). Despite the …

[HTML][HTML] Sex Matters: Policy on Reporting Sex as a Biological Variable at Research and Practice in Thrombosis and Hemostasis

BS Bannow, M Cushman - Research and Practice in Thrombosis and …, 2023 - rpthjournal.org
One of our favorite bits of party trivia (you can tell who we hang out with) is to ask folks to
guess when the National Institutes of Health (NIH) started to require the inclusion of women …

[HTML][HTML] The “lived” experience of menstruating women commencing anticoagulants

U Sheikh, A Ding, O Nzelu, LN Roberts, J Johns… - Research and practice …, 2023 - Elsevier
Background Although there is increased recognition that many menstruating women
commenced on anticoagulants experience heavy menstrual bleeding, little research has …

Barriers to using the Menstrual Cycle as a Preventative and Diagnostic Tool in Adolescent Primary Care Settings

B Beermann - 2023 - academiccommons.columbia.edu
Master’s Thesis Barriers to using the Menstrual Cycle as a Preventative and Diagnostic Tool
in Adolescent Primary Care Setting Page 1 Master’s Thesis Barriers to using the Menstrual …

Total Self-BAT scores associated with choice of heavy menstrual bleeding treatment

HP Eising, MC Punt, E Grimberg, TR Schermer… - 2024 - researchsquare.com
Background Heavy menstrual bleeding (HMB) is frequently the indicating symptom of an
underlying bleeding disorder. The self-administered bleeding assessment tool (self-BAT) …