Addressing Indigenous rights and interests in genetic resources has become increasingly
challenging in an open science environment that promotes unrestricted access to genomic …

Research has historically focussed on participants who are relatively easy to access; those
who have resources (time and literacy) to respond to surveys, who can travel, and are …

Advances in omics and specifically genomic technologies are increasingly transforming rare
disease diagnosis. However, the benefits of these advances are disproportionately …

Genetic polymorphisms may be involved with mercury levels and signs and symptoms of
intoxication from this exposure. Therefore, the aims were to describe the frequency of the …

Genomics research related to Indigenous people has been at worst exploitative and at best,
retrospectively on a journey to improve effective engagement of Indigenous individuals and …

The willingness to donate human biological material for research purposes is shaped by
socio-cultural factors; however, there is a lack of studies analysing the social perception of …

Background Privacy-related concerns can prevent equitable participation in health research
by US Indigenous communities. However, studies focused on these communities' views …

While biobanking is expanding globally, the empirical evidence concerning the impact of
religion on future healthcare professionals' awareness and willingness to donate …

Dynamic Consent (DC) is both a model and a specific web-based tool that enables clear,
granular communication and recording of participant consent choices over time. The DC …

This qualitative review explores how established citizen science models can inform and
support meaningful engagement of public in health research in Australia. In particular, with …