Quality of life, psychological distress, and prognostic perceptions in caregivers of patients with multiple myeloma

EK O'Donnell, YN Shapiro, AJ Yee, O Nadeem… - Blood …, 2022 - ashpublications.org
Although caregivers of patients with multiple myeloma (MM) play a critical role in supporting
their loved ones throughout the illness course, studies examining caregiver quality of life …

[HTML][HTML] Palliative care in colorectal and anal malignancies from diagnosis to death

M Karlekar, K Almhanna… - Annals of Palliative …, 2023 - apm.amegroups.org
Colorectal (CRC) and anal (AC) cancer, both lower gastrointestinal (GI) cancers vary in their
presentation and treatment. Overall, the incidence of CRC has decreased. However, the …

Prognostic Awareness in Terminally Ill Cancer Patients: A Narrative Literature Review of the Processes Involved

M Chichua, D Mazzoni, E Brivio… - Cancer Management …, 2023 - Taylor & Francis
High prognostic awareness (PA) is seen by many as a threat to terminal patients'
psychological well-being. Whether this concern is supported by evidence or not is still a …

Instability in Caregivers' perception of dementia as a terminal disease

C Malhotra, I Balasubramanian - Journal of the American Medical Directors …, 2023 - Elsevier
Objectives Family caregivers' perception that dementia is a terminal disease influence end-
of-life (EoL) care of persons with severe dementia (PwSDs). Yet, this perception and the …

[HTML][HTML] Patient-caregiver dyads' prognostic information preferences and perceptions in advanced cancer

NCA van der Velden, EMA Smets, M Hagedoorn… - Journal of pain and …, 2023 - Elsevier
Context Prognostic information is considered important for advanced cancer patients and
primary informal caregivers to prepare for the end of life. Little is known about discordance in …

Prognostic awareness in advanced cancer patients and their caregivers: a longitudinal cohort study

M Loučka, K Vlčková, A Tučková, K Poláková… - Psycho …, 2021 - Wiley Online Library
Objective The aim of this study was to analyse longitudinal development of prognostic
awareness in advanced cancer patients and their families. Methods This was a longitudinal …

Caregiver engagement in serious illness communication in a long-term acute care hospital setting

K Levoy, RL Ashare, N Ganta… - American Journal of …, 2023 - journals.sagepub.com
Context Prolonged management of critical illnesses in long-term acute care hospitals
(LTACH) makes serious illness communication (SIC), a clinical imperative. SIC in LTACH is …

Prognostic understanding among advanced heart failure patients and their caregivers: a longitudinal dyadic study

LC Poco, EB Andres, I Balasubramanian… - Patient Education and …, 2024 - Elsevier
Objectives To examine heart failure patients' and caregivers' prognostic understanding (PU)
over time, and patient and caregiver factors associated with their own and each other's PU …

Perceptions of prognosis and end-of-life care outcomes in patients with advanced lung and gastrointestinal cancer

TF Gray, R Plotke, L Heuer, CEW Topping… - Palliative …, 2023 - journals.sagepub.com
Background: Many patients with advanced cancer have misperceptions of their prognosis,
which may impact end-of-life decision-making. Data regarding associations between …

[HTML][HTML] Patient-caregiver communication concordance in cancer—refinement of the Cancer Communication Assessment Tool in an Australian sample

N Michael, A Gorelik, E Georgousopoulou… - Supportive Care in …, 2022 - Springer
Purpose The objective of this study was to expand the international psychometric validation
of the Cancer Communication Assessment Tool for Patients and Families (CCAT-PF) within …