[HTML][HTML] Rare Disease Research Partnership (RAinDRoP): a collaborative approach to identify research priorities for rare diseases in Ireland

S Somanadhan, E Nicholson, E Dorris… - HRB Open …, 2020 - ncbi.nlm.nih.gov
Background: Rare diseases are individually rare, but collectively these conditions are
common. Research on rare diseases are currently focused on disease-specific needs rather …

Rare Disease Research Partnership (RAinDRoP): a collaborative approach to identify research priorities for rare diseases in Ireland.

S Somanadhan, E Nicholson, E Dorris, A Brinkley… - lenus.ie
Background: Rare diseases are individually rare, but collectively these conditions are
common. Research on rare diseases are currently focused on disease-specific needs rather …

[PDF][PDF] Rare Disease Research Partnership (RAinDRoP): a collaborative approach to identify research priorities for rare diseases in Ireland [version 2; peer review: 2 …

S Somanadhan, E Nicholson, E Dorris… - 2020 - … .s3.eu-west-1.amazonaws.com
HRB Open Research Page 1 RESEARCH ARTICLE Rare Disease Research Partnership (RAinDRoP):
a collaborative approach to identify research priorities for rare diseases in Ireland[version 2; …

Rare Disease Research Partnership (RAinDRoP): a collaborative approach to identify research priorities for rare diseases in Ireland

S Somanadhan, E Nicholson, E Dorris… - HRB open …, 2020 - pubmed.ncbi.nlm.nih.gov
Background: Rare diseases are individually rare, but collectively these conditions are
common. Research on rare diseases are currently focused on disease-specific needs rather …

Rare Disease Research Partnership (RAinDRoP): a collaborative approach to identify the top 15 research priorities for rare diseases.

S Somanadhan, E Nicholson, E Dorris… - HRB Open …, 2020 - europepmc.org
Background: The Rare Disease Research Partnership (RAinDRoP) was established in 2018
to bring together a wide variety of diverse voices in the rare disease community in Ireland …

[PDF][PDF] Rare Disease Research Partnership (RAinDRoP): a collaborative approach to identify research priorities for rare diseases in Ireland [version 2; peer review: 2 …

S Somanadhan, E Nicholson, E Dorris, A Brinkley… - 2020 - pdfs.semanticscholar.org
Methods: A participatory multiple phase approach was used to identify research priorities for
rare diseases. The research process involved three main phases: Phase I, Public …

Rare Disease Research Partnership (RAinDRoP): a collaborative approach to identify the top 15 research priorities for rare diseases.

S Somanadhan, E Nicholson, E Dorris… - HRB Open …, 2020 - europepmc.org
Background: The Rare Disease Research Partnership (RAinDRoP) was established in 2018
to bring together a wide variety of diverse voices in the rare disease community in Ireland …