Ethical considerations and palliative care in patients with amyotrophic lateral sclerosis: a review
V Danel-Brunaud, L Touzet, L Chevalier, C Moreau… - Revue …, 2017 - Elsevier
Amyotrophic lateral sclerosis (ALS) is not a curable disease, but it is treatable. By definition,
much of the care provided to ALS patients is palliative, even though active life-sustaining …
much of the care provided to ALS patients is palliative, even though active life-sustaining …
Amyotrophic lateral sclerosis: ethical issues from diagnosis to end of life
L McCluskey - NeuroRehabilitation, 2007 - content.iospress.com
The variable clinical course of Amyotrophic Lateral Sclerosis (ALS) confronts the clinician,
the patient and caregivers with many ethical challenges from the moment of breaking the …
the patient and caregivers with many ethical challenges from the moment of breaking the …
Ethical considerations in the management of amyotrophic lateral sclerosis
A Eisen, C Krieger - Progress in Neurobiology, 2013 - Elsevier
This article examines some of the ethical concerns relevant for the management of
amyotrophic lateral sclerosis (ALS). We emphasize the importance for providing a …
amyotrophic lateral sclerosis (ALS). We emphasize the importance for providing a …
[HTML][HTML] Ethical challenges in tracheostomy-assisted ventilation in amyotrophic lateral sclerosis
M Magelssen, T Holmøy, MA Horn, OA Fondenæs… - Journal of …, 2018 - Springer
The special nature of amyotrophic lateral sclerosis (ALS) and tracheostomy with invasive
ventilation (TIV) leads to challenges that can be difficult in two senses: not only to handle …
ventilation (TIV) leads to challenges that can be difficult in two senses: not only to handle …
[HTML][HTML] Ethical principles in patient-centered medical care to support quality of life in amyotrophic lateral sclerosis
D Lulé, A Kübler, AC Ludolph - Frontiers in neurology, 2019 - frontiersin.org
It is one of the primary goals of medical care to secure good quality of life (QoL) while
prolonging survival. This is a major challenge in severe medical conditions with a prognosis …
prolonging survival. This is a major challenge in severe medical conditions with a prognosis …
Physicians' attitudes toward end-of-life decisions in amyotrophic lateral sclerosis
Abstract Objective: This study aims (1) to assess physicians' attitudes toward different
palliative end-of-life (EOL) practices in amyotrophic lateral sclerosis (ALS) care, including …
palliative end-of-life (EOL) practices in amyotrophic lateral sclerosis (ALS) care, including …
[HTML][HTML] End of life decisions in amyotrophic lateral sclerosis: a cross-cultural perspective
A Smyth, M Riedl, R Kimura, R Olick… - Journal of the neurological …, 1997 - Elsevier
In an era where life-sustaining technology offers physicians unprecedented powers to
prolong survival in terminal illness, the question of how end of life decisions are made has …
prolong survival in terminal illness, the question of how end of life decisions are made has …
Discontinuation of mechanical ventilation in patients with amyotrophic lateral sclerosis
GD Borasio, R Voltz - Journal of neurology, 1998 - Springer
Mechanical ventilation, both invasive and non-invasive, may be an effective means of
improving the quality of life and prolonging the survival of patients suffering from …
improving the quality of life and prolonging the survival of patients suffering from …
Quality of life in fatal disease: the flawed judgement of the social environment
D Lulé, B Ehlich, D Lang, S Sorg, J Heimrath… - Journal of …, 2013 - Springer
Decisions to prolong or shorten life in fatal diseases like amyotrophic lateral sclerosis are
strongly influenced by healthy individuals, such as caregivers and physicians. Furthermore …
strongly influenced by healthy individuals, such as caregivers and physicians. Furthermore …
[HTML][HTML] Caregivers' view of socio-medical care in the terminal phase of amyotrophic lateral sclerosis—How can we improve holistic care in ALS?
K Linse, E Aust, R Günther, A Hermann - Journal of Clinical Medicine, 2022 - mdpi.com
Multidimensional socio-medical care with an early integration of palliative principles is
strongly recommended in amyotrophic lateral sclerosis (ALS), but provided inconsistently …
strongly recommended in amyotrophic lateral sclerosis (ALS), but provided inconsistently …