Consensus quality indicators for monitoring multiple sclerosis

I Voigt, S Fischer, U Proschmann… - The Lancet Regional …, 2024 - thelancet.com
Multiple sclerosis (MS) as a chronic, degenerative autoimmune disease of the central
nervous system has a longitudinal and heterogeneous course with increasing treatment …

Association between clinic-level quality of care and patient-level outcomes in multiple sclerosis

AH He, A Manouchehrinia, A Glaser… - Multiple Sclerosis …, 2023 - journals.sagepub.com
Background: Multiple sclerosis (MS) quality of care guidelines are consensus-based. The
effectiveness of the recommendations is unknown. Objective: To determine whether clinic …

International consensus on quality standards for brain health-focused care in multiple sclerosis

J Hobart, A Bowen, G Pepper, H Crofts… - Multiple Sclerosis …, 2019 - journals.sagepub.com
Background: Time matters in multiple sclerosis (MS). Irreversible neural damage and cell
loss occur from disease onset. The MS community has endorsed a management strategy of …

The agenda of the global patient reported outcomes for multiple sclerosis (PROMS) initiative: Progresses and open questions

P Zaratin, P Vermersch, MP Amato, G Brichetto… - Multiple Sclerosis and …, 2022 - Elsevier
Abstract On 12 September 2019, the global Patient Reported Outcome for Multiple Sclerosis
(PROMS) Initiative was launched at the 35th Congress of the European Committee for …

Building a monitoring matrix for the management of multiple sclerosis

I Voigt, H Inojosa, J Wenk, K Akgün, T Ziemssen - Autoimmunity Reviews, 2023 - Elsevier
Multiple sclerosis (MS) has a longitudinal and heterogeneous course, with an increasing
number of therapy options and associated risk profiles, leading to a constant increase in the …

The global patient-reported outcomes for multiple sclerosis initiative: bridging the gap between clinical research and care–updates at the 2023 plenary event

P Zaratin, S Samadzadeh, M Seferoğlu… - Frontiers in …, 2024 - frontiersin.org
Significant advancements have been achieved in delineating the progress of the Global
PROMS (PROMS) Initiative. The PROMS Initiative, a collaborative endeavor by the …

Introducing a core dataset for real-world data in multiple sclerosis registries and cohorts: Recommendations from a global task force

T Parciak, L Geys, A Helme… - Multiple Sclerosis …, 2024 - journals.sagepub.com
Background: As of September 2022, there was no globally recommended set of core data
elements for use in multiple sclerosis (MS) healthcare and research. As a result, data …

[PDF][PDF] Challenges in monitoring the quality of care in multiple sclerosis

UK Zettl, N Frahm, M Hecker - The Lancet Regional Health–Europe, 2024 - thelancet.com
We read with interest the publication by Voigt et al. who compiled 24 quality indicators (QIs)
and checklists to document and improve the quality of care for people with multiple sclerosis …

Timely intervention, monitoring and education MATTERS in MS (TIME MATTERS in MS): Development of a globally applicable quality improvement tool

J Hobart, H Butzkueven, J Haartsen… - Multiple Sclerosis …, 2022 - journals.sagepub.com
Background Previously, consensus MS care standards were defined by MS specialist
neurologists from 19 countries. We developed, piloted and refined an Excel-based quality …

Multiple sclerosis outcome assessments consortium: genesis and initial project plan

RA Rudick, N LaRocca, LD Hudson… - Multiple Sclerosis …, 2014 - journals.sagepub.com
The need for improved clinical outcome measures in multiple sclerosis trials has been
recognized for two decades, but only recently has the Food and Drug Administration (FDA) …