Impact of education on APOL1 testing attitudes among prospective living kidney donors

JG Nestor, AJ Li, KL King, SA Husain… - Clinical …, 2022 - Wiley Online Library
It is unknown how providing prospective living donors with information about APOL1,
including the benefits and drawbacks of testing, influences their desire for testing. In this …

African American living donors' attitudes about APOL1 genetic testing: a mixed methods study

EJ Gordon, D Amόrtegui, I Blancas, C Wicklund… - American Journal of …, 2018 - Elsevier
Rationale & Objective African American live kidney donors (“donors”) have a greater risk for
kidney failure than European American donors. Apolipoprotein L1 gene (APOL1) variants in …

Variation of ApoL1 Testing Practices for Living Kidney Donors

T McIntosh, S Mohan, D Sawinski… - Progress in …, 2020 - journals.sagepub.com
Introduction: Tests exist for ApoL1 genetic variants to determine whether a potential donor's
kidneys are at increased risk of kidney failure. Variants of the ApoL1 gene associated with …

Implementation of a culturally competent APOL1 genetic testing programme into living donor evaluation: A two-site, non-randomised, pre–post trial design

JD Smith, A Agrawal, C Wicklund, D Duquette… - BMJ open, 2023 - bmjopen.bmj.com
Introduction While living donor (LD) kidney transplantation is the optimal treatment for
patients with kidney failure, LDs assume a higher risk of future kidney failure themselves …

[HTML][HTML] Protocol: Implementation of a culturally competent APOL1 genetic testing programme into living donor evaluation: A two-site, non-randomised, pre–post trial …

JD Smith, A Agrawal, C Wicklund, D Duquette… - BMJ Open, 2023 - ncbi.nlm.nih.gov
Introduction While living donor (LD) kidney transplantation is the optimal treatment for
patients with kidney failure, LDs assume a higher risk of future kidney failure themselves …

[PDF][PDF] Evaluating ApoL1 genetic testing policy options for transplant centers: a Delphi consensus panel project with stakeholders

T McIntosh, H Walsh, K Baldwin, A Iltis… - Clinical Journal of the …, 2024 - journals.lww.com
Background: ApoL1 variants G1 and G2 are associated with a higher risk of kidney disease.
ApoL1 risk variants are predominantly seen in individuals with sub-Saharan African …

APOL1 genetic testing in living kidney transplant donors

S Mohan, AS Iltis, D Sawinski, JM DuBois - American Journal of Kidney …, 2019 - Elsevier
The presence of 2 apolipoprotein L1 gene (APOL1) risk variants is associated with
increased risk for chronic kidney disease and end-stage kidney disease. Inferior allograft …

Introducing genetic tests with uncertain implications in living donor kidney transplantation: ApoL1 as a case study

LF Ross, JR Thistlethwaite Jr - Progress in Transplantation, 2016 - journals.sagepub.com
Genetic mutations in apolipoprotein L1 (ApoL1) are associated with kidney disease.
Apolipoprotein L1 mutations are common in African Americans (∼ 39% and 12% have 1 …

A focus group study on African American living donors' treatment preferences, sociocultural factors, and health beliefs about apolipoprotein L1 genetic testing

EJ Gordon, D Amórtegui, I Blancas… - Progress in …, 2019 - journals.sagepub.com
Introduction: Because apolipoprotein L1 (APOL1) risk variants may contribute to live donors'
kidney failure postdonation, professional guidelines suggest informing potential donors with …

[HTML][HTML] Opinions of African American adults about the use of apolipoprotein L1 (ApoL1) genetic testing in living kidney donation and transplantation

M Berrigan, J Austrie, A Fleishman, KP Tercyak… - American Journal of …, 2021 - Elsevier
Apolipoprotein L1 (ApoL1) predictive genetic testing for kidney disease, and its emerging
role in transplantation, remains controversial as it may exacerbate underlying disparities …