Understanding delivery of collectively built protocols in an online health community for discontinuation of psychiatric drugs

A Papoutsaki, S So, G Kenderova, B Shapiro… - Proceedings of the …, 2021 - dl.acm.org
People often turn to online health communities (OHCs) for peer support on their specific
medical conditions and health-related concerns. Over time, core members in OHCs build a …

Unpacking the use of laboratory test results in an online health community throughout the medical care trajectory

TL Reynolds, J Zhang, K Zheng, Y Chen - Proceedings of the ACM on …, 2022 - dl.acm.org
While easy patient access to laboratory test results is necessary for patient engagement in
their healthcare, it is not sufficient to enable patients to thrive in this role? they must be able …

The Future of Research on Online Health Communities: Discussing Membership, Structure, and Support

A Papoutsaki, J Huh-Yoo, H MacLeod… - … Publication of the 2021 …, 2021 - dl.acm.org
Online health communities (OHCs) are spaces where people gather for informational and
emotional support around specific medical conditions and concerns. Although OHCs are an …

Lost in migration: Information management and community building in an online health community

D Nakikj, L Mamykina - Proceedings of the 2018 CHI Conference on …, 2018 - dl.acm.org
The ever-growing volume of information within online health communities (OHCs) presents
an urgent need for new solutions that improve the efficiency of information organization and …

A park or a highway: Overcoming tensions in designing for socio-emotional and informational needs in online health communities

D Nakikj, L Mamykina - Proceedings of the 2017 ACM conference on …, 2017 - dl.acm.org
Over the years online health communities (OHCs) have become an important source of
information regarding health management and a place for social interaction and emotional …

Clinical questions in online health communities: the case of" See your doctor" threads

J Huh - Proceedings of the 18th ACM Conference on Computer …, 2015 - dl.acm.org
Online health communities are known to provide psychosocial support. However, concerns
for misinformation being shared around clinical information persist. An existing practice …

Tackling dilemmas in supporting'the whole person'in online patient communities

J Huh, R Patel, W Pratt - Proceedings of the SIGCHI Conference on …, 2012 - dl.acm.org
Online health communities that engage the patient as a whole person attend to personal
and medical needs in a holistic manner. Whether current communities structure interaction …

[HTML][HTML] Pragmatics to Reveal Intent in Social Media Peer Interactions: Mixed Methods Study

T Singh, S Olivares, T Cohen, N Cobb, J Wang… - Journal of Medical …, 2021 - jmir.org
Background Online health communities (OHCs) have emerged as the leading venues for
behavior change and health-related information seeking. The soul and success of these …

Nurturing health-related online support groups: Exploring the experiences of patient moderators

NS Coulson, RL Shaw - Computers in Human Behavior, 2013 - Elsevier
The aim of this study was to examine the views of moderators across a diverse and
geographically broad range of online support groups about their moderator experiences and …

Video-mediated peer support in an online community for recovery from substance use disorders

S Rubya, S Yarosh - Proceedings of the 2017 ACM Conference on …, 2017 - dl.acm.org
People in recovery from substance use disorders seek peer support through online health
communities like InTheRooms. com (ITR). This community provides the unique opportunity …