Surveillance Compliance and Quality of Life Assessment Among Surgical Patients with Familial Adenomatous Polyposis Syndrome

N Alhassan, H Helmi, A Alzamil, A Alshammari… - Journal of Epidemiology …, 2024 - Springer
Background Familial adenomatous polyposis (FAP) syndrome has a near-100% lifetime risk
of colorectal cancer. Early surveillance and prophylactic surgery have been advocated to …

Long‐term compliance with endoscopic surveillance for familial adenomatous polyposis

KFL Douma, EMA Bleiker, NK Aaronson… - Colorectal …, 2010 - Wiley Online Library
Aim The study assessed compliance of patients with familial adenomatous polyposis (FAP)
with endoscopic surveillance. Method In this nationwide, cross‐sectional study, individuals …

Impact of screening on survival in familial adenomatous polyposis

L Koskenvuo, J Pitkäniemi, M Rantanen… - Journal of clinical …, 2016 - journals.lww.com
Background: The screening of families with FAP has been shown to be profitable in reducing
colorectal cancer-related mortality, but conclusions about the screening effect on overall …

Patients' views of surgery and surveillance for familial adenomatous polyposis

K Fritzell, C Persson, J Björk, R Hultcrantz… - Cancer …, 2010 - journals.lww.com
Background: Familial adenomatous polyposis (FAP) is an inherited condition that requires
prophylactic surgery (colectomy) followed by a lifetime program of endoscopic surveillance …

Surgical interventions, malignancies, and causes of death in a FAP patient registry

AR Cannon, M Keener, D Neklason… - Journal of Gastrointestinal …, 2021 - Elsevier
Background Familial adenomatous polyposis (FAP) patients are at risk for numerous
malignancies. Multiple surgeries exist to mitigate the risk of colorectal cancer. Surgeons …

Quality of life and consequences for daily life of familial adenomatous polyposis (FAP) family members

KFL Douma, EMA Bleiker, HFA Vasen… - Colorectal …, 2011 - Wiley Online Library
Aim The study aimed to document the impact of familial adenomatous polyposis (FAP) on
health‐related quality of life (HRQOL) and several practical aspects of daily life, and to …

Recent trends in the morbidity and mortality in patients with familial adenomatous polyposis: a retrospective single institutional study in Japan

Y Mori, K Amano, K Chikatani, T Ito, O Suzuki… - International Journal of …, 2022 - Springer
Background This study aimed to assess current trends in morbidity and mortality among
patients with familial adenomatous polyposis (FAP). These data can be used for optimal …

Cancer in Patients with Familial Adenomatous Polyposis: A Nationwide Danish Cohort Study with Matched Controls

JG Karstensen, S Bülow, H Højen, AM Jelsig… - Gastroenterology, 2023 - Elsevier
Background & Aims Familial adenomatous polyposis (FAP) is a hereditary disorder that
predisposes patients to colorectal cancer (CRC). Prophylactic colectomy has greatly …

Guidelines for the surveillance and management of familial adenomatous polyposis (FAP): a world wide survey among 41 registries

Vasen, Bülow… - Colorectal …, 1999 - Wiley Online Library
Objectives FAP is an autosomal dominant disease characterized by numerous adenomas in
the colorectum. The majority of patients also develop adenomas in the duodenum. The …

Colorectal cancer surveillance behaviors among members of typical and attenuated FAP families

AY Kinney, B Hicken, SE Simonsen… - Official journal of the …, 2007 - journals.lww.com
OBJECTIVES Although enhanced colorectal surveillance is recommended for members of
familial adenomatous polyposis (FAP) families, little is known about individual-level …