Systematic review: unmet supportive care needs in people diagnosed with chronic liver disease

PC Valery, E Powell, N Moses, ML Volk, SM McPhail… - BMJ open, 2015 - bmjopen.bmj.com
Objective People with chronic liver disease, particularly those with decompensated cirrhosis,
experience several potentially debilitating complications that can have a significant impact …

Exploratory study into the unmet supportive needs of people diagnosed with cirrhosis in Queensland, Australia

PC Valery, PJ Clark, SM McPhail… - Internal medicine …, 2017 - Wiley Online Library
Background Many patients with cirrhosis follow complex medication and dietary regimens,
and those with decompensated cirrhosis suffer debilitating complications. These factors …

[PDF][PDF] The patient's perspective in cirrhosis: unmet supportive care needs differ by disease severity, etiology, and age

PC Valery, CM Bernardes, B Mckillen… - Hepatology …, 2021 - Wiley Online Library
Patients with cirrhosis have significant physical, psychological, and practical needs. We
documented patients' perceived need for support with these issues and the differences with …

[HTML][HTML] Supportive and palliative care in people with cirrhosis: international systematic review of the perspective of patients, family members and health professionals

JTS Low, G Rohde, K Pittordou, B Candy, S Davis… - Journal of …, 2018 - Elsevier
Background & Aims People with cirrhosis have unmet needs, which could benefit from a
palliative care approach. Developing effective services needs to be based on evidence from …

Development and evaluation of the supportive needs assessment tool for cirrhosis (SNAC)

PC Valery, CM Bernardes, KA Stuart… - Patient preference …, 2020 - Taylor & Francis
Background We report the development and psychometric testing of a Supportive Needs
Assessment tool for Cirrhosis (SNAC). Methods The 50-item SNAC was administered to …

[HTML][HTML] Quality of life and unmet needs in patients with chronic liver disease: A mixed-method systematic review

LL Grønkjær, MM Lauridsen - JHEP Reports, 2021 - Elsevier
Background & Aims In an attempt to uncover unmet patient needs, this review aims to
synthesise quantitative and qualitative studies on patients' quality of life and their experience …

The incompatibility of healthcare services and end-of-life needs in advanced liver disease: a qualitative interview study of patients and bereaved carers

B Hudson, V Hunt, A Waylen, CA McCune… - Palliative …, 2018 - journals.sagepub.com
Background: Liver disease represents the third commonest cause of death in adults of
working age and is associated with an extensive illness burden towards the end of life …

What is the patient experience in advanced liver disease? A scoping review of the literature

B Kimbell, SA Murray - BMJ Supportive & Palliative Care, 2015 - spcare.bmj.com
Background There has been a dramatic increase in liver disease over recent decades, with
morbidity and mortality rates predicted to rise significantly. In order to effectively support this …

[PDF][PDF] The emotional burden of caregiving for patients with cirrhosis

ZM Saleh, NE Salim, S Nikirk, M Serper… - Hepatology …, 2022 - Wiley Online Library
Caregivers for patients with cirrhosis face immense physical and psychological strain that
negatively impact quality of life and ability to care for oneself. The aim is to explore the …

How can primary care enhance end-of-life care for liver disease? Qualitative study of general practitioners' perceptions and experiences

H Standing, H Jarvis, J Orr, C Exley, M Hudson… - BMJ open, 2017 - bmjopen.bmj.com
Background Liver disease is the third most common cause of premature death in the UK.
The symptoms of terminal liver disease are often difficult to treat, but very few patients see a …