Burden of caring: risks and consequences imposed on caregivers of those living and dying with advanced heart failure

A Strömberg, ML Luttik - … opinion in supportive and palliative care, 2015 - journals.lww.com
Caregivers are important partners in care and their lives are seriously affected by the
condition of advanced heart failure. Studies on the longitudinal effects of the caregiving role …

Do partners of patients with chronic heart failure experience caregiver burden?

S Ågren, L Evangelista… - European Journal of …, 2010 - journals.sagepub.com
Aims: To describe the levels and identify independent predictors of caregiver burden in
partners of patients with heart failure. Background: Care and support from a partner are …

Patterns and predictors of patient and caregiver engagement in heart failure care: a multi-level dyadic study

CS Lee, E Vellone, KS Lyons, A Cocchieri… - International journal of …, 2015 - Elsevier
Background Heart failure is a burdensome clinical syndrome, and patients and their
caregivers are responsible for the vast majority of heart failure care. Objectives This study …

'The importance of planning for the future': burden and unmet needs of caregivers' in advanced heart failure: a mixed methods study

S McIlfatrick, LC Doherty, M Murphy… - Palliative …, 2018 - journals.sagepub.com
Background: While studies have evaluated caregiver outcomes in heart failure, the burden
and support needs when caring for someone with advanced heart failure at the end of life …

“We're all we got is each other”: Mixed-methods analysis of patient-caregiver dyads' management of heart failure

KE Nelson, MA Saylor, A Anderson, H Buck… - Heart & lung, 2022 - Elsevier
Background Individuals living with heart failure often require informal caregiving assistance
for optimal self-care maintenance. The influence of caregiver burden and resilience on …

[HTML][HTML] Inadequate communication exacerbates the support needs of current and bereaved caregivers in advanced heart failure and impedes shared decision …

D Fitzsimons, LC Doherty, M Murphy… - Journal of …, 2019 - journals.lww.com
Background: Clinicians face considerable challenges in identifying patients with advanced
heart failure who experience significant symptom burden at the end of life. Often, these …

The situation of caregivers in heart failure and their role in improving patient outcomes

A Strömberg - Current Heart Failure Reports, 2013 - Springer
This paper describes experiences of caregivers to patients with heart failure and their role in
improving patient outcomes. Being related to and caring for someone with heart failure …

Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review

J Nicholas Dionne-Odom, SA Hooker, D Bekelman… - Heart failure …, 2017 - Springer
Many of the 23 million individuals with heart failure (HF) worldwide receive daily, unpaid
support from a family member or friend. Although HF and palliative care practice guidelines …

Perceived caring needs in patient–partner dyads affected by heart failure: A qualitative study

M Liljeroos, S Ågren, T Jaarsma… - Journal of clinical …, 2014 - Wiley Online Library
Aims and objectives To explore the perceived caring needs in patient–partner dyads
affected by heart failure to develop an understanding of potential areas of support …

Family caregiver outcomes in heart failure

SJ Pressler, I Gradus-Pizlo, SD Chubinski… - American Journal of …, 2009 - AACN
Background Family caregivers of patients with heart failure report high stress, burden, and
poor emotional and physical health, but less is known about predictors of health among …