[HTML][HTML] Development and evaluation of a customized checklist to assess the quality control of disease registry systems of Tehran, the capital of Iran in 2021

M Barzin, H Sabbaghi, S Kamfar, A Seifi… - BMC Health Services …, 2023 - Springer
Background Clinical registries facilitate medical research by providing 'real data'. In the past
decade, an increasing number of disease registry systems (DRS) have been initiated in Iran …

Disease registry system in northwest of Iran: The first step forward in research progress with review of literature

J Aghazadeh, H Pirnejad, I Mohebbi… - Journal of Research …, 2019 - jrcm.tbzmed.ac.ir
Public health monitoring and evaluation is one of the basic goals in every healthcare
system. In this regard, registration system can be used as a powerful tool in disease …

Data verification of nationwide clinical quality registries

LR Van der Werf, SC Voeten, CMM van Loe… - BJS open, 2019 - academic.oup.com
Background Clinical auditing is an emerging instrument for quality assessment and
improvement. Moreover, clinical registries facilitate medical research as they provide 'real …

Providing a Framework for Evaluation Disease Registry and Health Outcomes Software: Updating the CIPROS Checklist

F Shafiee, M Sarbaz, P Marouzi, AB Yazdipour… - Journal of Biomedical …, 2023 - Elsevier
Background and aims Properly designed and implemented registry systems play an
important role in improving health outcomes and reducing care costs, and can provide a true …

Measuring data quality: a review of the literature between 2005 and 2013

J Stausberg, D Nasseh… - Digital Healthcare …, 2015 - ebooks.iospress.nl
A literature review was done within a revision of a guideline concerned with data quality
management in registries and cohort studies. The review focused on quality indicators …

[HTML][HTML] Impact of clinical registries on quality of patient care and clinical outcomes: a systematic review

DME Hoque, V Kumari, M Hoque, R Ruseckaite… - PloS one, 2017 - journals.plos.org
Background Clinical quality registries (CQRs) are playing an increasingly important role in
improving health outcomes and reducing health care costs. CQRs are established with the …

Data quality in rare diseases registries

Y Kodra, M Posada de la Paz, A Coi, M Santoro… - … : update and overview, 2017 - Springer
In the field of rare diseases, registries are considered power tool to develop clinical
research, to facilitate the planning of appropriate clinical trials, to improve patient care and …

Clinical registries data quality attributes to support registry-based randomised controlled trials: a scoping review

KH Prang, B Karanatsios, E Verbunt, HL Wong… - Contemporary clinical …, 2022 - Elsevier
Background Clinical registries have become an important platform for performance
measurement, quality improvement, and clinical research including registry-based …

[HTML][HTML] Facilitating harmonized data quality assessments. A data quality framework for observational health research data collections with software implementations …

CO Schmidt, S Struckmann, C Enzenbach… - BMC medical research …, 2021 - Springer
Background No standards exist for the handling and reporting of data quality in health
research. This work introduces a data quality framework for observational health research …

Data Quality in health records: A literature review

MD Iturry, SN Alves-Souza, M Ito… - 2021 16th Iberian …, 2021 - ieeexplore.ieee.org
Electronic Health Records (EHR) and Electronic Medical Records (EMR) are data
repositories that contain medical and treatment history of patients. Data collected in EHR …