'So often they do not get recruited': exploring service user and staff perspectives on participation in learning disability research and the barriers that inhibit it

B Crook, R Tomlins, A Bancroft… - British Journal of Learning …, 2016 - Wiley Online Library
Accessible summary The government and NHS say it is important for people with learning
disabilities to be able to take part in research if they want to. We asked five people with …

Practising partnership: involving people with learning difficulties in research

L Ward, K Simons - British Journal of Learning Disabilities, 1998 - Wiley Online Library
Traditionally, research has been done on people with learning difficulties, rather than with
them. However, attitudes to this issue are changing. On the one hand some people with …

Setting up participatory research: a discussion of the initial stages

A Burke, J McMillan, L Cummins… - British Journal of …, 2003 - Wiley Online Library
Participatory research is becoming a very popular way of helping to empower people with
learning disabilities. All stages of this kind of research are conducted in partnership with non …

Deciding what to research: an overview of a participatory workshop

R Northway, K Hurley, C O'Connor… - British Journal of …, 2014 - Wiley Online Library
Accessible summary People with learning disabilities are involved in doing research more
and more. A lot of papers have been written about this. These papers sometimes do not say …

'It's only right that we get involved': service‐user perspectives on involvement in learning disability services

L Hoole, S Morgan - British Journal of Learning Disabilities, 2011 - Wiley Online Library
Accessible summary• Government policy talks about how important it is that people who use
services get a say in what happens. People with learning disabilities don't always get as …

Participation in research by people with learning disability: origins and issues

C Kiernan - British journal of learning disabilities, 1999 - Wiley Online Library
'Traditional'research with people with learning disability is very much research on rather
than research with people. New models or paradigms of research place the 'subjects' of …

Research ethics committees and the benefits of involving people with profound and multiple learning disabilities in research

K Boxall, S Ralph - British Journal of Learning Disabilities, 2011 - Wiley Online Library
Accessible summary• People with learning disabilities who do not use speech are often left
out of research.• Ways of doing research which do not use words (for example, using …

Involving people with learning disabilities in research: issues and possibilities

T Gilbert - Health & social care in the community, 2004 - Wiley Online Library
Advances in the social position of people with learning disabilities have led to a situation
where research and evaluation studies are increasingly required to include the views and …

“… their opinions mean something”: Care staff's attitudes to health research involving people with intellectual disabilities

N Hall, MA Durand, SE Mengoni - British Journal of Learning …, 2017 - Wiley Online Library
Accessible summary It is important for people with intellectual disabilities to be involved in
research about their health care. Eight people working in the care sector were interviewed …

Developing a training course to teach research skills to people with learning disabilities:“It gives us a voice. We CAN be researchers!”

I Tuffrey‐Wijne, CKK Lam, D Marsden… - British Journal of …, 2020 - Wiley Online Library
Accessible Summary We are eight people with learning disabilities. We did a training course
at a university in London. It was called “Learning how to do research.” We learned about the …