Aligning with the flow of control: A grounded theory study of choice and autonomy in decision-making practices of people with intellectual disabilities

E Carey - International Journal of Qualitative Studies on Health …, 2021 - Taylor & Francis
Purpose: Choice and autonomy are recognized as values facilitating genuine self-
determination. Subsequently greater understanding of these concepts in decision-making …

Psychologists' perspectives on supported decision making in Ireland

E Rogers, M Pilch, BE McGuire… - Journal of Intellectual …, 2020 - Wiley Online Library
Background A new legal capacity act was introduced in Ireland in 2015. This study aimed to
identify and critically examine key issues in the area of decision‐making capacity from the …

The meaning of 'choice and control'for people with intellectual disabilities who are planning their social care and support

V Williams, S Porter - Journal of Applied Research in …, 2017 - Wiley Online Library
Background This paper questions consumerist assumptions in current English social care
policy and aims to look behind the processes of personalization to interrogate what 'choice …

Exploring professional decision making in relation to safeguarding: A grounded theory study of social workers and community nurses in community learning …

Z Hodges, R Northway - Journal of applied research in …, 2019 - Wiley Online Library
Background People with intellectual disabilities are at increased risk of abuse which may not
always be responded to appropriately. This study therefore sought to explore how nurses …

Negotiated autonomy in diabetes self‐management: The experiences of adults with intellectual disability and their support workers

LC Whitehead, HT Trip, LA Hale… - Journal of Intellectual …, 2016 - Wiley Online Library
Background The basic human right of autonomy is underpinned by the ability to practice
decision‐making. The rights of people with disabilities to engage in autonomous decision …

Relationships matter!—Utilising ethics of care to understand transitions in the lives of adults with severe intellectual disabilities

P Jacobs, E Quayle, H Wilkinson… - British Journal of …, 2021 - Wiley Online Library
Accessible summary People with severe and profound intellectual disabilities need others to
support them in most areas of their life. It can be difficult to communicate with people about …

Experiences and perceptions of everyday decision-making in the lives of adults with intellectual disabilities, their care partners and direct care support workers

H Casey, A Trayer, D Desmond… - Journal of Intellectual …, 2023 - journals.sagepub.com
Background: Decisional support is important to people with intellectual disabilities. This
review explores: i) how everyday decision-making is perceived and/or experienced by …

Being in control: Choice and control of support received in supported living. A study based on the narratives of people with intellectual disability and support staff

M Pallisera, M Vilà, J Fullana… - Journal of Intellectual & …, 2021 - Taylor & Francis
Background: This research aims to study the role of people with intellectual disability in
taking decisions regarding the support provided under the supported living model. Method …

Subjective quality of life of women with intellectual disabilities: The role of perceived control over their own life in self‐determined behaviour

I Strnadová, D Evans - Journal of Applied Research in …, 2012 - Wiley Online Library
Background Quality of life for people with intellectual disabilities has been reported in the
research literature across differing demographics. There has been, however, little research …

Investigating supported decision‐making for persons with mild to moderate intellectual disability using Institutional ethnography

N Devi, B Prodinger, A Pennycott… - Journal of Policy and …, 2020 - Wiley Online Library
Making one's own choices is an important part of leading a fulfilling life within society.
However, people with IDs often face significant obstacles when making their own decisions …