Background Habitual physical activity (PA) and exercise form a cornerstone of the
management of cystic fibrosis (CF), a genetically inherited pulmonary and digestive …

Background Making trials more patient-centred improves recruitment and retention, patient
satisfaction and makes research accessible to a more representative population. We aimed …

The SARS-CoV-2 pandemic has disrupted clinical trials worldwide. The European Cystic
Fibrosis Society-Clinical Trials Network (ECFS-CTN) has tracked clinical trial disruption by …

Background Regular participation in physical activity by people with cystic fibrosis (CF)
promotes positive clinical and health outcomes including reduced rate of decline in lung …

Objectives The COVID‐19 pandemic has resulted in unprecedent changes to clinical
practice, and as the impact upon delivery of exercise services for people with cystic fibrosis …

Background Increasing physical activity in people with Cystic Fibrosis (pwCF) can positively
influence their physical and mental wellbeing. Online activities provide opportunity for …

Background: Physical activity (PA) and exercise are widely documented as key components
in the management of cystic fibrosis (CF). In recent years there have been significant …

Background Patients' and families' expectation that a cure for cystic fibrosis (CF) will be
found is high. In other debilitating conditions, high expectation has been shown to drive a …

There are many uncertainties regarding Cystic Fibrosis (CF) treatment. Recently, the first
James Lind Alliance (JLA) Priority Setting Partnership (PSP) in CF was completed, bringing …

Background Patient-centred trial design optimises recruitment and retention, reduces trial
failure rates and increases the diversity of trial cohorts. This allows safe and effective …