“Taming the Beast”: Exploring the Lived Experience of Relapsing Remitting Multiple Sclerosis Using a Life History Approach

T Burke, S Vucic, J Patching - Research and Theory for …, 2019 - connect.springerpub.com
Background and Purpose The aim of this study was to gain insights and understanding into
the lived experience of relapsing remitting multiple sclerosis (RRMS) in order to better inform …

Exploring life history methodology in chronic illness: a study in Relapsing Remitting Multiple Sclerosis

T Burke, J Patching - Australian Journal of Advanced Nursing …, 2019 - search.informit.org
Objective: The aim of this study was to gain insights into the lived experience of a chronic
disease, Relapsing Remitting Multiple Sclerosis (RRMS). Selecting the most effective …

The lived experience of relapsing multiple sclerosis: A phenomenological study

CM Miller - Journal of Neuroscience Nursing, 1997 - journals.lww.com
Multiple sclerosis (MS) is a demyelinating disease of the central nervous system that is well
known but poorly understood by the medical and nursing community as well as the general …

Management of 'surplus suffering'in relapsing remitting multiple sclerosis to improve patient quality of life

T Burke, S Vucic, J Patching - British Journal of Neuroscience …, 2018 - magonlinelibrary.com
Background: A study exploring the lived experience of relapsing remitting multiple sclerosis
(RRMS) identified the potential for 'surplus suffering'in this group of patients. This article …

[图书][B] The experience of young adults living with relapsing-remitting multiple sclerosis

BK Beshears - 2010 - search.proquest.com
The purpose of this interpretive phenomenological study was to explore and interpret the
experience of young adults living with relapsing-remitting multiple sclerosis (RRMS) who …

The lived experience of multiple sclerosis relapse: how adults with multiple sclerosis processed their relapse experience and evaluated their need for postrelapse care

M Asano, K Hawken, M Turpin, A Eitzen… - Multiple Sclerosis …, 2015 - Wiley Online Library
Background. Multiple sclerosis (MS) relapses can take a toll on individuals' health and
quality of life. Given such consequences of relapses, postrelapse care beyond …

“Always looking for a new balance”: toward an understanding of what it takes to continue working while being diagnosed with relapsing-remitting multiple sclerosis

H Meide, D Gorp, K van der Hiele… - Disability and …, 2018 - Taylor & Francis
Background: The aim of this study was to gain insight into the meaning of work in the
everyday lives of people with relapsing-remitting multiple sclerosis, and the barriers and …

Understanding the Symptoms and Impacts Experienced by People with Relapsing–Remitting MS: A Qualitative Investigation Using Semi-Structured Interviews

A Barrett, O Olayinka-Amao, T Ziemssen… - Neurology and …, 2024 - Springer
Introduction Multiple sclerosis (MS) is a disabling disease with unpredictable clinical
manifestations. As clinical assessments may not fully capture the impact of MS on quality of …

The experience of transitioning from relapsing remitting to secondary progressive multiple sclerosis: views of patients and health professionals

E O'Loughlin, S Hourihan, J Chataway… - Disability and …, 2017 - Taylor & Francis
Purpose: The majority of people with multiple sclerosis (pwMS) initially present with discreet
periods of relapses followed by partial remission of symptoms (RRMS). Over time, most …

The journey to multiple sclerosis: a qualitative study

W Koopman, A Schweitzer - Journal of Neuroscience Nursing, 1999 - search.proquest.com
The diagnosis of multiple sclerosis (MS) often creates more questions than answers. It is not
uncommon to hear about individuals who receive the diagnosis with relief and surprise …