One diagnosis, two perspectives: Lived experiences of persons with young-onset dementia and their care-partners

PJ Popok, M Reichman, L LeFeber… - The …, 2022 - academic.oup.com
Abstract Background and Objectives Young-onset dementias (YODs) are a set of
progressive illnesses that are stressful for both persons with the diagnosis and their care …

Psychosocial stressors and adaptive coping strategies in couples after a diagnosis of young-onset dementia

SM Bannon, M Reichman, P Popok… - The …, 2022 - academic.oup.com
Abstract Background and Objectives Diagnoses of young-onset dementias (YODs) are
devastating for persons with dementia and spousal caregivers yet limited work has …

A race against time: couples' lived diagnostic journeys to young-onset dementia

VA Grunberg, SM Bannon, P Popok… - Aging & mental …, 2022 - Taylor & Francis
Purpose Young onset dementias (YOD)–typically defined by symptom onset before age 65–
are frequently overlooked in medical and community settings. Persons with YOD and their …

Thematic analysis of dyadic coping in couples with young-onset dementia

SM Bannon, VA Grunberg, M Reichman… - JAMA network …, 2021 - jamanetwork.com
Importance A diagnosis of young-onset dementia (YOD) is a life-altering event for both
persons with dementia and their spousal caregivers. Dyadic coping (DC) theoretical models …

Caring for people with young onset dementia: An interpretative phenomenological analysis of family caregivers' experiences

C Kilty, P Boland, J Goodwin… - Journal of Psychosocial …, 2019 - journals.healio.com
People with young onset dementia (YOD) experience many unique challenges. Similarly,
family caregivers experience changing personal, familial, and societal roles. However, YOD …

Family experience of young-onset dementia: the perspectives of spouses and children

I Chirico, G Ottoboni, S Linarello, E Ferriani… - Aging & Mental …, 2022 - Taylor & Francis
Objectives Although young-onset dementia (YOD) affects the whole family system, this
population is still under-represented in literature, and no progress in care provision has …

In it together: A qualitative meta-synthesis of common and unique psychosocial stressors and adaptive coping strategies of persons with young-onset dementia and …

S Bannon, M Reichman, P Popok, J Wagner… - The …, 2022 - academic.oup.com
Abstract Background and Objectives The common and unique psychosocial stressors and
adaptive coping strategies of people with young-onset dementia (PWDs) and their …

Psychosocial treatment preferences of persons living with young-onset dementia and their partners

VA Grunberg, SM Bannon, M Reichman… - …, 2022 - journals.sagepub.com
Persons living with young-onset dementia and their partners often experience elevated
emotional distress as they cope with an unexpected progressive illness during an active life …

Young-onset dementia: A systematic review of the psychological and social impact on relatives

M Wiggins, A McEwen, A Sexton - Patient Education and Counseling, 2023 - Elsevier
Objective Young-onset dementia (YOD) has significant impact for the affected person, but
also has far-reaching effects on the family. Additionally, biological relatives have an …

Lived experiences of maintaining self-identity among persons living with young-onset dementia: A qualitative meta-synthesis

X Tang, J Wang, B Wu, AM Navarra, X Cui… - Dementia, 2023 - journals.sagepub.com
Background The self-identity of persons with young-onset dementia (YOD) is affected by the
disease progression. However, the lived experience of maintaining self-identity along the …