The experience of parents living with a child with cancer at the end of life

SC Wang, LM Wu, YM Yang… - European journal of …, 2019 - Wiley Online Library
The study was to describe the essence of the lived experience of parents with a child with
incurable cancer at the end of life (EOL). A descriptive phenomenological study was …

[PDF][PDF] Being a parent of a child with cancer throughout the end-of-life course.

MC Kars, MHF Grypdonck… - Oncology Nursing …, 2011 - researchgate.net
Purpose/Objectives: To elucidate parents' experiences when caring at home for their child
with incurable cancer and to show how parents give meaning to their experiences …

'Don't forget the children': a qualitative study when a parent is at end of life from cancer

E McCaughan, CJ Semple, JR Hanna - Supportive Care in Cancer, 2021 - Springer
Purpose Preparation for end of life is one of the greatest challenges faced by parents with
cancer who have dependent children (< 18 years old), with requirement for support from …

Parental experience at the end-of-life in children with cancer:'preservation'and 'letting go'in relation to loss

MC Kars, MHF Grypdonck, MC de Korte-Verhoef… - Supportive Care in …, 2011 - Springer
Purpose For children with incurable cancer death usually is anticipated and preceded by a
phase of palliative care. Despite recognition that parents have difficulty adapting to a …

Children dying from cancer: parents' perspectives on symptoms, quality of life, characteristics of death, and end-of-life decisions

P Von Lützau, M Otto, T Hechler… - … of palliative care, 2012 - journals.sagepub.com
In this study, we investigated the experience of children who died of cancer, as perceived by
their parents. All the pediatric oncology departments in one German federal state were …

Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer

T Hechler, M Blankenburg, SJ Friedrichsdorf… - Klinische …, 2008 - thieme-connect.com
Background: In the present study, we investigated the situation of children who had
succumbed to their malignancy in Germany as perceived by their parents. Specifically, we …

[HTML][HTML] Parent's perspectives on the end-of-life care of their child with cancer: Indian perspective

SM Latha, JX Scott, S Kumar, SM Kumar… - Indian journal of …, 2016 - ncbi.nlm.nih.gov
Aims: This study aimed to identify the symptoms (medical/social/emotional) that most
concerned parents at the end-of-life care of their cancer child and to identify the strategies …

Parental experiences of adult child death from cancer

M Dean, S McClement, JB Bond Jr… - Journal of palliative …, 2005 - liebertpub.com
Background: Although parents experience the death of adult children diagnosed with
cancer, most of the literature on adult child death has examined the issues of violent death …

Listening to Parents of Children With Cancer—Between Life and its end

I Manor-Binyamini… - Journal of patient …, 2022 - journals.sagepub.com
This study aimed to explore and provide an in-depth insight into the experience and
perceptions of parents to children with cancer at the end of life (EOL). A sample of 15 …

Experiences of parents and general practitioners with end-of-life care in adolescents and young adults with cancer

SEJ Kaal, NMJ Kuijken, CA Verhagen… - Journal of Adolescent …, 2016 - liebertpub.com
This study aims to analyze the experiences of Dutch bereaved parents and general
practitioners (GPs) with palliative care of AYAs (18–35 years) in the terminal stage. Fifteen …