Analyzing genomic data across populations is central to understanding the role of genetic
factors in health and disease. Successful data sharing relies on public support, which …

With the use of genetic technology, researchers have the potential to inform medical
diagnoses and treatment in actionable ways. Accurate variant interpretation is a necessary …

Trust may be important in shaping public attitudes to genetics and intentions to participate in
genomics research and big data initiatives. As such, we examined trust in data sharing …

Background Public trust is central to the collection of genomic and health data and the
sustainability of genomic research. To merit trust, those involved in collecting and sharing …

Individuals participating in biobanks and other large research projects are increasingly
asked to provide broad consent for open-ended research use and widespread sharing of …

Studies on the public's willingness to donate blood specimens for genetic research are few
and are conducted mainly among Western countries. Little is known about the Asian …

Research assessing attitudes toward consent processes for high-throughput genomic-wide
technologies and widespread sharing of data is limited. In order to develop a better …

Purpose: Despite growing concerns toward maintaining participants' privacy, individual
investigators collecting tissue and other biological specimens for genomic analysis are …

Purpose: Sharing study data within the research community generates tension between two
important goods: promoting scientific goals and protecting the privacy interests of study …

Background Public willingness to donate tissue samples is critical to genetic research. Prior
work has linked minority status and mistrust with less willingness to provide specimens …