Background: Little is currently known about the perspectives of people with interstitial lung
disease and their carers in relation to the timing of palliative care conversations. Aim: To …

Background: While there have been some studies looking at the impact on quality of life of
patients with idiopathic pulmonary fibrosis, to date no qualitative research looking at the …

Background: Fibrotic interstitial lung disease is an incurable disease with poor prognosis.
We aimed to understand factors affecting decisions regarding referrals to specialist palliative …

The importance at the end of life of developing effective communication and meeting
information needs is recognised as being central to enhance patient and family centred …

Background: Idiopathic pulmonary fibrosis has an uncertain and rapid trajectory after
diagnosis. Palliative care is rarely utilized, although both patients and caregivers experience …

Introduction Patients with progressive idiopathic fibrotic interstitial lung disease (ILD), such
as those with idiopathic pulmonary fibrosis (IPF), can have an aggressive disease course …

Background Fibrotic interstitial lung disease is an incurable disease with poor prognosis. We
aimed to understand factors affecting decisions regarding referrals to specialist palliative …

Background Current guidelines recommend palliative care based on individual needs for
patients with idiopathic pulmonary fibrosis. However, patients with interstitial lung disease …

Background Interstitial lung diseases (ILDs) are a heterogeneous group of conditions
causing inflammation and fibrosis of the lung parenchyma. Progressive fibrotic ILD is …

Objectives The importance of palliative care in those with advanced fibrotic interstitial lung
diseases (F-ILD) is recognised, but the palliative care requirements of patients and …