Communication: breaking the news

R Sloan, GD Borasio - W Palliative care in amyotrophic lateral …, 2014 - books.google.com
Communication: breaking the news Page 38 Chapter 3 Communication: breaking the news
Richard Sloan and Gian Domenico Borasio Summary Telling a patient that they have an …

Delivering bad news in amyotrophic lateral sclerosis: proposal of specific technique ALS ALLOW

WF Edwards, S Malik, J Peters… - Neurology: Clinical …, 2021 - AAN Enterprises
Purpose of Review Physician communication skills are a critical part of care for amyotrophic
lateral sclerosis (ALS) patients and caregivers. They shape the development of autonomy …

What do people affected by amyotrophic lateral sclerosis want from health communications? Evidence from the ALS Talk Project

SK Genuis, W Luth, T Bubela, WS Johnston - Muscle & Nerve, 2023 - Wiley Online Library
Abstract Introduction/Aims Health communication is central to effective, supportive
amyotrophic lateral sclerosis (ALS) clinical care. Guidance for ALS communication is limited …

Communication about end of life for patients living with amyotrophic lateral sclerosis: a scoping review of the empirical evidence

SK Genuis, W Luth, S Campbell, T Bubela… - Frontiers in …, 2021 - frontiersin.org
Background: Communication about end of life, including advance care planning, life-
sustaining therapies, palliative care, and end-of-life options, is critical for the clinical …

Communication, information gathering and use among ALS stakeholders: Diagnosis and care

M Moir - 2019 - era.library.ualberta.ca
The pre and post diagnostic phases of amyotrophic lateral sclerosis (ALS) care are
inherently uncertain for patients and caregivers. The emotional character of ALS related …

Emotional disclosure in patients with amyotrophic lateral sclerosis: A randomized, controlled trial.

AJ Averill - 2007 - psycnet.apa.org
An emotional disclosure intervention, which involved either writing or speaking about a
traumatic event, was tested in a population of 48 patients with Amyotrophic Lateral Sclerosis …

Talking about the end of life: communication patterns in amyotrophic lateral sclerosis–a scoping review

A Erdmann, C Spoden, I Hirschberg… - Palliative care and …, 2022 - journals.sagepub.com
Amyotrophic lateral sclerosis (ALS) leads to death on average 2–4 years after the onset of
symptoms. Although many people with the disease decide in favour of life-sustaining …

Advance directives

GD Borasio, R Voltz - … care in amyotrophic lateral sclerosis: from …, 2014 - books.google.com
The use of advance directives (ADs) is increasing in many parts of the world, allowing the
wishes of patients to be clear even when they are not able to express them due to the …

Experiences and reflections of patients with motor neuron disease on breaking the news in a two-tiered appointment: a qualitative study

AA Seeber, AJ Pols, A Hijdra, HF Grupstra… - BMJ supportive & …, 2019 - spcare.bmj.com
Background Breaking bad news should be fine-tuned to the individual patient, contain
intelligible information, include emotional support and offer a tailor-made treatment plan. To …

How narrative journalistic stories can communicate the individual's challenges of daily living with amyotrophic lateral sclerosis

J Jeppesen, J Rahbek, O Gredal… - The Patient-Patient …, 2015 - Springer
Background To complement the clinical and therapeutic knowledge about the symptoms,
prognosis, and social implications of amyotrophic lateral sclerosis (ALS), health research …