What motivates informal carers to be actively involved in research, and what obstacles to involvement do they perceive?

C Malm, S Andersson, M Kylén, S Iwarsson… - Research involvement …, 2021 - Springer
Background Due to demographic changes and a strained public sector operating in many
countries globally, informal care is increasing. Currently, at least 1.3 million adults in …

A balance between putting on the researcher's hat and being a fellow human being: a researcher perspective on informal carer involvement in health and social care …

C Malm, H Jönson, S Andersson, E Hanson - Health Research Policy and …, 2022 - Springer
Background Public involvement in health and social care research is increasingly prioritized
by policy-makers and research funders. Often, the impact of the involvement is described in …

Moving beyond the first response phenomenon: exploring carers' views and experiences of being involved in research and development work

C Malm, S Andersson, H Jönson… - International journal of …, 2019 - emerald.com
Purpose In Sweden, the care of older people and people with disabilities is increasingly
carried out by informal carers, often family members, who are unpaid and outside a …

The influence of institutional discourses on the work of informal carers: an institutional ethnography from the perspective of informal carers

GW Øydgard - BMC Health Services Research, 2017 - Springer
Background The growing numbers of seniors worldwide and the need for support and
services that follow from a higher standard of living have led to an increased focus on scarce …

Informal carers in Sweden–striving for partnership

E Blanck, A Fors, L Ali, M Brännström… - International journal of …, 2021 - Taylor & Francis
Purpose Informal carers have an important role in society through their care and support of
their long-term ill relatives. Providing informal care is challenging and can lead to caregiver …

The Expert Caregiver Intervention Targeting Former Caregivers in Finland: A Co-Design and Feasibility Study Using Mixed Methods

S Åkerman, F Nyqvist, L Coll-Planas… - International journal of …, 2021 - mdpi.com
Informal caregivers face risks of social isolation. Given the high prevalence of informal
caregivers in Europe, a considerable proportion of the population are also former …

Links between informal caregiving and volunteering in Sweden: a 17-year perspective

M Jegermalm, EJ Grassman - European Journal of Social Work, 2013 - Taylor & Francis
This article analyses informal caregiving and volunteering in organizations over 17 years in
Sweden, with a focus on links between these two forms of unpaid activities. The discussion …

Volunteers and informal caregivers' contributions and collaboration with formal caregivers in Norwegian long-term care

MS Skinner, H Lorentzen, L Tingvold… - Journal of aging & …, 2021 - Taylor & Francis
The article illuminates and discusses the realism of policy-makers' goals to increase
involvement of volunteers and informal caregivers in long-term care services in Norway …

Mapping support policies for informal carers across the European Union

E Courtin, N Jemiai, E Mossialos - Health policy, 2014 - Elsevier
Background At a time when health and social care services in European countries are under
pressure to contain or cut costs, informal carers are relied upon as the main providers of …

The working informal caregiver model: A mixed methods approach to explore future informal caregiving by working caregivers

EE Vos, HBM Hilderink, SR de Bruin, AJ van der Beek… - Sustainability, 2022 - mdpi.com
A growing number of informal caregivers of older adults combine caregiving with a paid job,
raising the question of whether they will be able to meet the increasing demand for informal …