Introduction: The German PID-NET registry was founded in 2009, serving as the first national
registry of patients with primary immunodeficiencies (PID) in Germany. It is part of the …

In 2009, a federally funded clinical and research consortium (PID–NET, http://www. pid-net.
org) established the first national registry for primary immunodeficiencies (PID) in Germany …

Primary immunodeficiencies (PID) are rare diseases; therefore transnational studies are
essential to maximize the scientific outcome and to improve diagnosis and therapy. In order …

The current European Society for Immunodeficiencies (ESID) registry was established 10
years ago in 2004, when the system was moved from a paper-based to an online system …

Summary The Swiss National Registry for Primary Immunodeficiency Disorders (PID) was
established in 2008, constituting a nationwide network of paediatric and adult departments …

Because primary immunodeficiencies (PID) are rare diseases, transnational studies are
essential to maximize the scientific outcome and lead to improved diagnosis and therapy …

In order to build a common data pool and estimate the disease burden of primary
immunodeficiencies (PID) in Europe, the European Society for Immunodeficiencies (ESID) …

Introduction: Primary immunodeficiencies (PID) are a group of rare genetic disorders with a
multitude of clinical symptoms. Characterization of epidemiological and clinical data via …

Purpose To analyze the data of the national registry of all Dutch primary immune deficiency
(PID) patients, according to the European Society for Immunodeficiencies (ESID) definitions …

Background The number of inherited diseases and the spectrum of clinical manifestations of
primary immunodeficiency disorders (PIDs) are ever-expanding. Molecular diagnosis using …