Caregiver engagement practices in National Cancer Institute Clinical Oncology Research Program settings: implications for research to advance the field

CL Nightingale, KR Sterba, LE McLouth, EE Kent… - Cancer, 2021 - Wiley Online Library
Background Supportive care interventions have demonstrated benefits for both informal
and/or family cancer caregivers and their patients, but uptake generally is poor. To the …

Priorities to improve cancer caregiving: report of a caregiver stakeholder workshop

TH Thomas, GB Campbell, YJ Lee, MC Roberge… - Supportive Care in …, 2021 - Springer
Purpose Caregivers of people with cancer represent a large, overburdened, and under-
recognized part of the cancer care workforce. Research efforts to address the unmet needs …

Availability of family caregiver programs in US Cancer Centers

JN Odom, A Applebaum, MA Bakitas… - JAMA Network …, 2023 - jamanetwork.com
Importance Family caregivers provide the majority of health care to the 18 million patients
with cancer in the US. Yet despite providing complex medical and nursing care, a large …

Processes for identifying caregivers and screening for caregiver and patient distress in community oncology: results from WF-1803CD

CL Nightingale, AC Snavely, LE McLouth… - JNCI: Journal of the …, 2024 - academic.oup.com
Background Despite their vital roles, informal caregivers of adult cancer patients are
commonly overlooked in cancer care. This study describes processes for identifying cancer …

Moving family interventions into the real world: what matters to oncology stakeholders?

CG Ratcliff, CA Vinson, K Milbury… - Journal of psychosocial …, 2019 - Taylor & Francis
Background: Family interventions targeting patients and/or informal caregivers are
beneficial, but few have been integrated in oncology clinical care. Understanding diverse …

Developing a national implementation strategy to accelerate uptake of evidence‐based family caregiver support in US cancer centers

JN Odom, HM Young, K Sterba, TS Sannes… - Psycho …, 2024 - Wiley Online Library
Objective Characterize key factors and training needs of US cancer centers in implementing
family caregiver support services. Methods Sequential explanatory mixed methods design …

Toward engaging caregivers: inclusion in care and receipt of information and training among caregivers for cancer patients who have been hospitalized

ML Longacre, L Weber-Raley, EE Kent - Journal of Cancer Education, 2021 - Springer
Practice recommendations and policies (eg, CARE Act) emphasize identifying and training a
family caregiver during a patient's hospitalization, but engagement of caregivers is not …

Priorities for caregiver research in cancer care: an international Delphi survey of caregivers, clinicians, managers, and researchers

SD Lambert, L Ould Brahim, M Morrison… - Supportive Care in …, 2019 - Springer
Purpose With an increased investment in psychosocial caregiving research, it becomes
critical to establish the need for data of key stakeholders and future strategic directions. The …

Reducing informal caregiver burden in cancer: evidence-based programs in practice

ML Longacre, AJ Applebaum… - Translational …, 2018 - academic.oup.com
Caring for people with cancer can be a burdensome and emotionally straining experience.
Without adequate psychosocial support, distressed caregivers are at risk for psychiatric and …

Cancer versus non-cancer caregivers: An analysis of communication needs from the 2015 Caregivers in the US study.

EE Kent, M Longacre, L Weber-Raley, CG Whiting… - 2016 - ascopubs.org
4 Background: Informal caregiving for cancer patients can be both demanding and
burdensome–physically, emotionally, and financially–for many caregivers. Cancer …