Better to know than to imagine: including children in their health care

T Wangmo, E De Clercq, KM Ruhe… - AJOB empirical …, 2017 - Taylor & Francis
Background: This article describes the overall attitudes of children, their parents, and
attending physicians toward including or excluding pediatric patients in medical …

Parents' and physicians' perceptions of children's participation in decision-making in paediatric oncology: A quantitative study

M Rost, T Wangmo, F Niggli, K Hartmann… - Journal of bioethical …, 2017 - Springer
The goal is to present how shared decision-making in paediatric oncology occurs from the
viewpoints of parents and physicians. Eight Swiss Pediatric Oncology Group centres …

Parents' challenges and physicians' tasks in disclosing cancer to children. A qualitative interview study and reflections on professional duties in pediatric oncology

DO Badarau, T Wangmo, KM Ruhe… - Pediatric blood & …, 2015 - Wiley Online Library
Background Professional guidelines encourage physicians to provide children with as much
information regarding their health as deemed developmentally and emotionally appropriate …

What constitutes the best interest of a child? Views of parents, children, and physicians in a pediatric oncology setting

MC de Vries, D Bresters, GJL Kaspers… - AJOB Primary …, 2013 - Taylor & Francis
Background: In pediatrics, the “best interest” standard has become the prevailing standard in
decision making even though it proves difficult to apply in practice. Differences in values can …

Putting patient participation into practice in pediatrics—results from a qualitative study in pediatric oncology

KM Ruhe, T Wangmo, E De Clercq… - European journal of …, 2016 - Springer
Adequate participation of children and adolescents in their healthcare is a value underlined
by several professional associations. However, little guidance exists as to how this principle …

Communicating with child patients in pediatric oncology consultations: a vignette study on child patients', parents', and survivors' communication preferences

M Zwaanswijk, K Tates, S van Dulmen… - Psycho …, 2011 - Wiley Online Library
Objective: To investigate the preferences of children with cancer, their parents, and survivors
of childhood cancer regarding medical communication with child patients and variables …

Participation of children in medical decision-making: Challenges and potential solutions

V Jeremic, K Sénécal, P Borry, D Chokoshvili… - Journal of bioethical …, 2016 - Springer
Participation in healthcare decision-making is considered to be an important right of minors,
and is highlighted in both international legislation and public policies. However, despite the …

[HTML][HTML] Pediatric participation in medical decision making: optimized or personalized?

M Sabatello, A Janvier, E Verhagen… - The American Journal …, 2018 - Taylor & Francis
Olszewski and Goldkind (2018) argue that children's participation in medical decision
making should be “the default position” and that a stepwise approach is needed to ensure …

[HTML][HTML] Ethical issues at the interface of clinical care and research practice in pediatric oncology: a narrative review of parents' and physicians' experiences

MC de Vries, M Houtlosser, JM Wit, DP Engberts… - BMC medical …, 2011 - Springer
Background Pediatric oncology has a strong research culture. Most pediatric oncologists are
investigators, involved in clinical care as well as research. As a result, a remarkable …

Participation in pediatric oncology: views of child and adolescent patients

KM Ruhe, DO Badarau, P Brazzola… - Psycho …, 2016 - Wiley Online Library
Objective The aim of the present study is to explore patient's perspectives in pediatric
oncology on participation in discussions and decision‐making surrounding their cancer …