Discussions about treatment restrictions in chronic neurologic diseases: a structured review

AA Seeber, A Hijdra, M Vermeulen, DL Willems - Neurology, 2012 - AAN Enterprises
Objective: Many incurable neurologic diseases have predictable complications during their
course or at their end stage. Timely discussions of potential treatment restrictions may …

Patient and caregiver communications and decisions

D Gelinas - Neurology, 1997 - AAN Enterprises
Communication between neurologists and patients with amyotrophic lateral sclerosis (ALS),
as well as with their family members, is an extremely challenging aspect of patient care …

Therapeutic decisions in ALS patients: cross-cultural differences and clinical implications

PM Andersen, M Kuzma-Kozakiewicz, J Keller… - Journal of …, 2018 - Springer
Objective Quantitative analysis of decision-making on therapeutic options in different
sociocultural context in amyotrophic lateral sclerosis (ALS). Methods ALS patients (n= 244) …

Patient choices in ALS: life-sustaining treatment versus palliative care?

H Mitsumoto - Neurology, 1999 - AAN Enterprises
In this issue of Neurology, Albert et al. 1 examine one of the largest unanswered questions
about ALS care: Do patients choose life-sustaining interventions? Then, do they change …

[HTML][HTML] The role of palliative care in chronic progressive neurological diseases—A survey amongst neurologists in the Netherlands

HAW Walter, AA Seeber, DL Willems… - Frontiers in …, 2019 - frontiersin.org
Background: Chronic progressive neurological diseases like high grade glioma (HGG),
Parkinson's disease (PD), and multiple sclerosis (MS) are incurable, and associated with …

Risks and benefits of unapproved disease-modifying treatments for neurodegenerative disease

AC Feustel, A MacPherson, DA Fergusson, K Kieburtz… - Neurology, 2020 - AAN Enterprises
Objective To determine whether patients randomized to unapproved, disease-modifying
interventions in neurodegenerative disease trials have better outcomes than patients …

ALS patients and caregivers communication preferences and information seeking behaviour

A Chiò, A Montuschi, S Cammarosano… - European Journal of …, 2008 - Wiley Online Library
To evaluate information preferences and information seeking behaviour in ALS patients and
caregivers. Sixty ALS patients and caregivers couples were interviewed using a structured …

Palliative care in neurology: An overview

KM Foley, AC Carver - Neurologic clinics, 2001 - neurologic.theclinics.com
Palliative care in neurology is an evolving discipline of interest among neurologists who
care for chronically ill, critically ill, and dying patients with neurologic diseases. Increasing …

Responding to safety issues in frontotemporal dementias

KA Talerico, LK Evans - Neurology, 2001 - AAN Enterprises
As frontotemporal dementia progresses in individuals, safety issues related to behaviors and
injury become a paramount concern. In addition to self-care deficits, frontotemporal …

Are the rules for research with subjects with dementia changing? Views from the field

CB Stocking, GW Hougham, AR Baron, GA Sachs - Neurology, 2003 - AAN Enterprises
Deliberative bodies have recommended additional protections for persons with dementia
included in clinical trials. This survey of experienced dementia researchers revealed that 45 …