Process and outcome in communication of genetic information within families: a systematic review

CL Gaff, AJ Clarke, P Atkinson, S Sivell… - European Journal of …, 2007 - nature.com
The communication of risk is a central activity in clinical genetics, with genetic health
professionals encouraging the dissemination of relevant information by individuals to their at …

Family communication about genetic risk: the little that is known

BJ Wilson, K Forrest, ER van Teijlingen… - Public health …, 2004 - karger.com
Although family communication is important in clinical genetics only a small number of
studies have specifically explored the passing on of genetic knowledge to family members …

How communication of genetic information within the family is addressed in genetic counselling: a systematic review of research evidence

Á Mendes, M Paneque, L Sousa, A Clarke… - European Journal of …, 2016 - nature.com
Supporting consultands to communicate risk information with their relatives is key to
obtaining the full benefits of genetic health care. To understand how health-care …

To tell or not to tell: barriers and facilitators in family communication about genetic risk

K Forrest, SA Simpson, BJ Wilson… - Clinical …, 2003 - Wiley Online Library
Communication about genetic risk in families is an important issue for genetic counsellors.
The objective of this study was to explore the barriers and facilitators in family …

Communicating genetic information in families–a review of guidelines and position papers

LE Forrest, MB Delatycki, L Skene… - European Journal of …, 2007 - nature.com
This article aims to review ethical and clinical guidelines and policies addressing the
communication of genetic information in families. Websites of national and regional …

Outcomes of a randomised controlled trial of a complex genetic counselling intervention to improve family communication

J Hodgson, S Metcalfe, C Gaff, S Donath… - European Journal of …, 2016 - nature.com
When an inherited genetic condition is diagnosed in an individual it has implications for
other family members. Privacy legislation and ethical considerations can restrict health …

Interventions to improve risk communication in clinical genetics: systematic review

A Edwards, J Gray, A Clarke, J Dundon, G Elwyn… - Patient education and …, 2008 - Elsevier
OBJECTIVE: Effective risk communication may enable clients to participate effectively in
decision-making about their health and health care. A systematic review of existing literature …

Parents' and children's communication about genetic risk: a qualitative study, learning from families' experiences

A Metcalfe, G Plumridge, J Coad, A Shanks… - European Journal of …, 2011 - nature.com
Little is known about how parents explain to their children their risk of inheriting a gene that
may cause disease in the child or in the child's future progeny. This study explored how …

Family communication between children and their parents about inherited genetic conditions: a meta-synthesis of the research

A Metcalfe, J Coad, GM Plumridge, P Gill… - European Journal of …, 2008 - nature.com
In families affected by an inherited genetic condition, parents face a difficult task of having to
communicate genetic risk information to their children. A systematic review of all major …

Communicating genetic risk information within families: a review

M Wiseman, C Dancyger, S Michie - Familial cancer, 2010 - Springer
This review of family communication of genetic risk information addresses questions of what
the functions and influences on communication are; what, who and how family members are …