Process and outcome in communication of genetic information within families: a systematic review
CL Gaff, AJ Clarke, P Atkinson, S Sivell… - European Journal of …, 2007 - nature.com
The communication of risk is a central activity in clinical genetics, with genetic health
professionals encouraging the dissemination of relevant information by individuals to their at …
professionals encouraging the dissemination of relevant information by individuals to their at …
Family communication about genetic risk: the little that is known
BJ Wilson, K Forrest, ER van Teijlingen… - Public health …, 2004 - karger.com
Although family communication is important in clinical genetics only a small number of
studies have specifically explored the passing on of genetic knowledge to family members …
studies have specifically explored the passing on of genetic knowledge to family members …
How communication of genetic information within the family is addressed in genetic counselling: a systematic review of research evidence
Supporting consultands to communicate risk information with their relatives is key to
obtaining the full benefits of genetic health care. To understand how health-care …
obtaining the full benefits of genetic health care. To understand how health-care …
To tell or not to tell: barriers and facilitators in family communication about genetic risk
K Forrest, SA Simpson, BJ Wilson… - Clinical …, 2003 - Wiley Online Library
Communication about genetic risk in families is an important issue for genetic counsellors.
The objective of this study was to explore the barriers and facilitators in family …
The objective of this study was to explore the barriers and facilitators in family …
Communicating genetic information in families–a review of guidelines and position papers
LE Forrest, MB Delatycki, L Skene… - European Journal of …, 2007 - nature.com
This article aims to review ethical and clinical guidelines and policies addressing the
communication of genetic information in families. Websites of national and regional …
communication of genetic information in families. Websites of national and regional …
Outcomes of a randomised controlled trial of a complex genetic counselling intervention to improve family communication
J Hodgson, S Metcalfe, C Gaff, S Donath… - European Journal of …, 2016 - nature.com
When an inherited genetic condition is diagnosed in an individual it has implications for
other family members. Privacy legislation and ethical considerations can restrict health …
other family members. Privacy legislation and ethical considerations can restrict health …
Interventions to improve risk communication in clinical genetics: systematic review
A Edwards, J Gray, A Clarke, J Dundon, G Elwyn… - Patient education and …, 2008 - Elsevier
OBJECTIVE: Effective risk communication may enable clients to participate effectively in
decision-making about their health and health care. A systematic review of existing literature …
decision-making about their health and health care. A systematic review of existing literature …
Parents' and children's communication about genetic risk: a qualitative study, learning from families' experiences
A Metcalfe, G Plumridge, J Coad, A Shanks… - European Journal of …, 2011 - nature.com
Little is known about how parents explain to their children their risk of inheriting a gene that
may cause disease in the child or in the child's future progeny. This study explored how …
may cause disease in the child or in the child's future progeny. This study explored how …
Family communication between children and their parents about inherited genetic conditions: a meta-synthesis of the research
In families affected by an inherited genetic condition, parents face a difficult task of having to
communicate genetic risk information to their children. A systematic review of all major …
communicate genetic risk information to their children. A systematic review of all major …
Communicating genetic risk information within families: a review
M Wiseman, C Dancyger, S Michie - Familial cancer, 2010 - Springer
This review of family communication of genetic risk information addresses questions of what
the functions and influences on communication are; what, who and how family members are …
the functions and influences on communication are; what, who and how family members are …