Revisiting informed consent in forensic genomics in light of current technologies and the times

B Budowle, A Sajantila - International Journal of Legal Medicine, 2023 - Springer
Informed consent is based on basic ethical principles that should be considered when
conducting biomedical and behavioral research involving human subjects. These principles …

Problematizing consent: searching genetic genealogy databases for law enforcement purposes

G Samuel, D Kennett - New Genetics and Society, 2021 - Taylor & Francis
Genetic genealogy databases have become particularly attractive to law enforcement
agencies, especially in the United States (US), which have started to employ genealogists to …

Informed consent for human genetic and genomic studies: a systematic review

A Khan, BJ Capps, MY Sum, CN Kuswanto… - Clinical …, 2014 - Wiley Online Library
As genetic and genomic studies grow in scale, there are ethical concerns related to the
collection and use of genetic information. The emergence of large public databases …

Informed consent in translational genomics: insufficient without trustworthy governance

W Burke, LM Beskow, SB Trinidad… - The Journal of Law …, 2018 - journals.sagepub.com
Neither the range of potential results from genomic research that might be returned to
participants nor future uses of stored data and biospecimens can be fully predicted at the …

Informed consent for genetic research

JR Botkin - Current Protocols in Human Genetics, 2005 - Wiley Online Library
Genetic research often utilizes or generates information that is potentially sensitive to
individuals, families, or communities. For these reasons, genetic research may warrant …

Is informed consent broken?

GE Henderson - The American journal of the medical sciences, 2011 - Elsevier
For as long as the federal regulations governing human subjects research have existed, the
practice of informed consent has been attacked as culturally biased, legalistic, ritualistic and …

23 Informed consent and human genetic database research

S Kristinsson, V Árnason - Perspectives in Biology and Medicine, 2001 - cambridge.org
Since the Second World War, leading documents have espoused voluntary consent as
essential to the morality of research involving human subjects. The Nuremberg Code thus …

Consent process for US-based family reference DNA samples

SH Katsanis, L Snyder, K Arnholt… - Forensic Science …, 2018 - Elsevier
DNA collection from family members of the missing is a tenet for missing persons' and mass
fatality investigations. Procedures for consenting family members are disparate, depending …

The past, present, and future of informed consent in research and translational medicine

SM Wolf, EW Clayton… - The Journal of Law …, 2018 - journals.sagepub.com
Susan M. Wolf, JD, is McKnight Presidential Professor of Law, Medicine & Public Policy;
Faegre Baker Daniels Professor of Law; Professor of Medicine; and Chair of the Consortium …

Tailoring the process of informed consent in genetic and genomic research

CN Rotimi, PA Marshall - Genome Medicine, 2010 - Springer
Genomic science and associated technologies are facilitating an unprecedented rate of
discovery of novel insights into the relationship between human genetic variation and …