Revisiting informed consent in forensic genomics in light of current technologies and the times
B Budowle, A Sajantila - International Journal of Legal Medicine, 2023 - Springer
Informed consent is based on basic ethical principles that should be considered when
conducting biomedical and behavioral research involving human subjects. These principles …
conducting biomedical and behavioral research involving human subjects. These principles …
Problematizing consent: searching genetic genealogy databases for law enforcement purposes
Genetic genealogy databases have become particularly attractive to law enforcement
agencies, especially in the United States (US), which have started to employ genealogists to …
agencies, especially in the United States (US), which have started to employ genealogists to …
Informed consent for human genetic and genomic studies: a systematic review
As genetic and genomic studies grow in scale, there are ethical concerns related to the
collection and use of genetic information. The emergence of large public databases …
collection and use of genetic information. The emergence of large public databases …
Informed consent in translational genomics: insufficient without trustworthy governance
W Burke, LM Beskow, SB Trinidad… - The Journal of Law …, 2018 - journals.sagepub.com
Neither the range of potential results from genomic research that might be returned to
participants nor future uses of stored data and biospecimens can be fully predicted at the …
participants nor future uses of stored data and biospecimens can be fully predicted at the …
Informed consent for genetic research
JR Botkin - Current Protocols in Human Genetics, 2005 - Wiley Online Library
Genetic research often utilizes or generates information that is potentially sensitive to
individuals, families, or communities. For these reasons, genetic research may warrant …
individuals, families, or communities. For these reasons, genetic research may warrant …
Is informed consent broken?
GE Henderson - The American journal of the medical sciences, 2011 - Elsevier
For as long as the federal regulations governing human subjects research have existed, the
practice of informed consent has been attacked as culturally biased, legalistic, ritualistic and …
practice of informed consent has been attacked as culturally biased, legalistic, ritualistic and …
23 Informed consent and human genetic database research
S Kristinsson, V Árnason - Perspectives in Biology and Medicine, 2001 - cambridge.org
Since the Second World War, leading documents have espoused voluntary consent as
essential to the morality of research involving human subjects. The Nuremberg Code thus …
essential to the morality of research involving human subjects. The Nuremberg Code thus …
Consent process for US-based family reference DNA samples
SH Katsanis, L Snyder, K Arnholt… - Forensic Science …, 2018 - Elsevier
DNA collection from family members of the missing is a tenet for missing persons' and mass
fatality investigations. Procedures for consenting family members are disparate, depending …
fatality investigations. Procedures for consenting family members are disparate, depending …
The past, present, and future of informed consent in research and translational medicine
SM Wolf, EW Clayton… - The Journal of Law …, 2018 - journals.sagepub.com
Susan M. Wolf, JD, is McKnight Presidential Professor of Law, Medicine & Public Policy;
Faegre Baker Daniels Professor of Law; Professor of Medicine; and Chair of the Consortium …
Faegre Baker Daniels Professor of Law; Professor of Medicine; and Chair of the Consortium …
Tailoring the process of informed consent in genetic and genomic research
CN Rotimi, PA Marshall - Genome Medicine, 2010 - Springer
Genomic science and associated technologies are facilitating an unprecedented rate of
discovery of novel insights into the relationship between human genetic variation and …
discovery of novel insights into the relationship between human genetic variation and …