A qualitative interview study to explore adolescents' experience of alopecia areata and the content validity of sign/symptom patient‐reported outcome measures

J Macey, H Kitchen, NVJ Aldhouse… - British Journal of …, 2022 - academic.oup.com
Background The content validity (appropriateness and acceptability) of patient‐reported
outcome (PRO) measures for scalp hair loss, eyebrow loss, eyelash loss, nail damage and …

Development of the Scalp Hair Assessment PRO™ measure for alopecia areata

KW Wyrwich, H Kitchen, S Knight… - British Journal of …, 2020 - academic.oup.com
Background Valid patient‐reported outcome (PRO) measures are required to evaluate
alopecia areata (AA) treatments. Objectives To develop a content‐valid and clinically …

Development of a Self-Assessment Tool for Alopecia Areata

JN Pixley, ML Zaino, SR Feldman… - Journal of …, 2023 - journals.sagepub.com
To the Editor, Alopecia areata (AA) is commonly evaluated using the Severity of Alopecia
Tool (SALT), which assesses scalp surface coverage and hair density. However, the SALT …

[HTML][HTML] Development of clinician-reported outcome (ClinRO) and patient-reported outcome (PRO) measures for eyebrow, eyelash and nail assessment in alopecia …

KW Wyrwich, H Kitchen, S Knight… - American journal of …, 2020 - Springer
Background Eyebrow and eyelash hair loss and nail damage—in addition to scalp hair loss—
are important signs/symptoms of alopecia areata (AA) to patients and deserve assessment …

[HTML][HTML] Dermatologist and patient perceptions of treatment success in alopecia areata and evaluation of clinical outcome assessments in Japan

J Macey, H Kitchen, NVJ Aldhouse, RT Burge… - Dermatology and …, 2021 - Springer
Introduction The content validity and treatment success thresholds of clinical outcome
assessments (COAs) for alopecia areata (AA)—including the Alopecia Areata-Investigator …

[HTML][HTML] Validation of the Alopecia Areata Patient Priority Outcomes (AAPPO) questionnaire in adults and adolescents with alopecia areata

KW Wyrwich, R Winnette, R Bender, K Gandhi… - Dermatology and …, 2022 - Springer
Introduction Individuals with alopecia areata (AA) may experience significant impacts on
their health-related quality of life. The novel Alopecia Areata Patient Priority Outcomes …

Analysis of alopecia areata surveys suggests a threshold for improved patient‐reported outcomes

Y Renert‐Yuval, J Correa da Rosa… - British Journal of …, 2022 - academic.oup.com
Background Although alopecia areata (AA) greatly impacts patients' quality of life (QoL),
there is no adequate validation of AA‐targeted QoL surveys in clinical trials, hindering …

[HTML][HTML] The role of patients in alopecia areata endpoint development: understanding physical signs and symptoms

KW Wyrwich, H Kitchen, S Knight, NVJ Aldhouse… - Journal of Investigative …, 2020 - Elsevier
Meaningful patient input to understand disease experience and patient expectations for
improvement with treatment is essential for the selection and development of outcome …

A qualitative exploration of the experiences of adolescents with alopecia areata and their messages for healthcare professionals

I de Vere Hunt, A McNiven… - British Journal of …, 2021 - academic.oup.com
1 Kimball AB, Kerdel F, Adams D et al. Adalimumab for the treatment of moderate to severe
hidradenitis suppurativa: a parallel randomized trial. Ann Intern Med 2012; 157: 846–55. 2 …

[HTML][HTML] The relationship between patient-reported severity of hair loss and health-related quality of life and treatment patterns among patients with alopecia areata

HL Gelhorn, K Cutts, E Edson-Heredia, P Wright… - Dermatology and …, 2022 - Springer
Introduction Alopecia areata (AA) is an autoimmune disease characterized by hair loss.
Patients with AA experience a range of social and emotional impacts, and the lack of …