[HTML][HTML] Understanding changes in genetic literacy over time and in genetic research participants

ID Little, LM Koehly, C Gunter - The American Journal of Human Genetics, 2022 - cell.com
As genomic and personalized medicine becomes mainstream, assessing and
understanding the public's genetic literacy is paramount. Because genetic research drives …

[HTML][HTML] The many facets of genetic literacy: assessing the scalability of multiple measures for broad use in survey research

LR Abrams, CM McBride, GW Hooker, JN Cappella… - PloS one, 2015 - journals.plos.org
Objectives To determine how three dimensions of genetic literacy (familiarity, skills, and
factual knowledge) fit the hierarchy of knowledge outlined in EM Rogers' Diffusion of …

Future forecasting for research and practice in genetic literacy

KA Kaphingst - Public Health Genomics, 2023 - karger.com
Information generated by genomic discoveries is increasingly accessible in clinical, public
health, and direct-to-consumer contexts, reaching broader segments of the population than …

[HTML][HTML] Variability in conceptualizations and measurement of genetic literacy

BM Daly, KA Kaphingst - PEC innovation, 2023 - Elsevier
Objective To examine definitions and measures for genetic literacy in the published
literature, and the associations between commonly utilized measures. Methods We …

Assessing genetic literacy awareness and knowledge gaps in the US population: results from the Health Information National Trends Survey

M Krakow, CL Ratcliff, BW Hesse… - Public Health …, 2018 - karger.com
Abstract Background/Aims: Public understanding of the role of genetics in disease risk is key
to appropriate disease prevention and detection. This study assessed the current extent of …

[HTML][HTML] New literacy challenge for the twenty-first century: genetic knowledge is poor even among well educated

R Chapman, M Likhanov, F Selita, I Zakharov… - Journal of community …, 2019 - Springer
We live in an age of rapidly advancing genetic research. This research is generating new
knowledge that has implications for personal health and well-being. The present study …

Genetic knowledge among participants in the Coriell Personalized Medicine Collaborative

TJ Schmidlen, L Scheinfeldt, R Zhaoyang… - Journal of genetic …, 2016 - Springer
Genetic literacy is essential for the effective integration of genomic information into
healthcare; yet few recent studies have been conducted to assess the current state of this …

[HTML][HTML] A comparison of genome cohort participants' genetic knowledge and preferences to receive genetic results before and after a genetics workshop

K Yamamoto, A Shimizu, F Aizawa, H Kawame… - Journal of human …, 2018 - nature.com
Several biobanks have begun returning genetic results to individuals, making the
development of public genetic literacy an urgent task for their effective use. No research …

GeneLiFT: A novel test to facilitate rapid screening of genetic literacy in a diverse population undergoing genetic testing

H Milo Rasouly, N Cuneo, M Marasa… - Journal of Genetic …, 2021 - Wiley Online Library
With the broader introduction of genomic medicine in research and clinical care, an
increasing number of persons are offered genetic testing. Many factors, including genetic …

[HTML][HTML] What does it mean to be genomically literate?: National Human Genome Research Institute meeting report

B Hurle, T Citrin, JF Jenkins, KA Kaphingst… - Genetics in …, 2013 - nature.com
Genomic discoveries will increasingly advance the science of medicine. Limited genomic
literacy may adversely impact the public's understanding and use of the power of genetics …