[HTML][HTML] Understanding changes in genetic literacy over time and in genetic research participants
As genomic and personalized medicine becomes mainstream, assessing and
understanding the public's genetic literacy is paramount. Because genetic research drives …
understanding the public's genetic literacy is paramount. Because genetic research drives …
[HTML][HTML] The many facets of genetic literacy: assessing the scalability of multiple measures for broad use in survey research
Objectives To determine how three dimensions of genetic literacy (familiarity, skills, and
factual knowledge) fit the hierarchy of knowledge outlined in EM Rogers' Diffusion of …
factual knowledge) fit the hierarchy of knowledge outlined in EM Rogers' Diffusion of …
Future forecasting for research and practice in genetic literacy
KA Kaphingst - Public Health Genomics, 2023 - karger.com
Information generated by genomic discoveries is increasingly accessible in clinical, public
health, and direct-to-consumer contexts, reaching broader segments of the population than …
health, and direct-to-consumer contexts, reaching broader segments of the population than …
[HTML][HTML] Variability in conceptualizations and measurement of genetic literacy
BM Daly, KA Kaphingst - PEC innovation, 2023 - Elsevier
Objective To examine definitions and measures for genetic literacy in the published
literature, and the associations between commonly utilized measures. Methods We …
literature, and the associations between commonly utilized measures. Methods We …
Assessing genetic literacy awareness and knowledge gaps in the US population: results from the Health Information National Trends Survey
Abstract Background/Aims: Public understanding of the role of genetics in disease risk is key
to appropriate disease prevention and detection. This study assessed the current extent of …
to appropriate disease prevention and detection. This study assessed the current extent of …
[HTML][HTML] New literacy challenge for the twenty-first century: genetic knowledge is poor even among well educated
We live in an age of rapidly advancing genetic research. This research is generating new
knowledge that has implications for personal health and well-being. The present study …
knowledge that has implications for personal health and well-being. The present study …
Genetic knowledge among participants in the Coriell Personalized Medicine Collaborative
Genetic literacy is essential for the effective integration of genomic information into
healthcare; yet few recent studies have been conducted to assess the current state of this …
healthcare; yet few recent studies have been conducted to assess the current state of this …
[HTML][HTML] A comparison of genome cohort participants' genetic knowledge and preferences to receive genetic results before and after a genetics workshop
K Yamamoto, A Shimizu, F Aizawa, H Kawame… - Journal of human …, 2018 - nature.com
Several biobanks have begun returning genetic results to individuals, making the
development of public genetic literacy an urgent task for their effective use. No research …
development of public genetic literacy an urgent task for their effective use. No research …
GeneLiFT: A novel test to facilitate rapid screening of genetic literacy in a diverse population undergoing genetic testing
With the broader introduction of genomic medicine in research and clinical care, an
increasing number of persons are offered genetic testing. Many factors, including genetic …
increasing number of persons are offered genetic testing. Many factors, including genetic …
[HTML][HTML] What does it mean to be genomically literate?: National Human Genome Research Institute meeting report
B Hurle, T Citrin, JF Jenkins, KA Kaphingst… - Genetics in …, 2013 - nature.com
Genomic discoveries will increasingly advance the science of medicine. Limited genomic
literacy may adversely impact the public's understanding and use of the power of genetics …
literacy may adversely impact the public's understanding and use of the power of genetics …