How uncertainty influences lay people's attitudes and risk perceptions concerning predictive genetic testing and risk communication
S Wöhlke, M Schaper, S Schicktanz - Frontiers in Genetics, 2019 - frontiersin.org
The interpretation of genetic information in clinical settings raises moral issues about
adequate risk communication and individual responsibility about one's health behavior …
adequate risk communication and individual responsibility about one's health behavior …
Responsibility in dealing with genetic risk information
S Wöhlke, J Perry - Social Theory & Health, 2021 - Springer
Predictive testing information raises questions about risk communication, health
responsibility, and about how to deal with the gap between knowledge of risks and options …
responsibility, and about how to deal with the gap between knowledge of risks and options …
Capturing how individuals perceive genetic risk information: a phenomenological perspective
S Oliveri, G Pravettoni - Journal of Risk Research, 2018 - Taylor & Francis
The prevailing scientific approach to genetic risk information centres around communication
of risk in terms of numerical probabilities. However, it is well known that individuals have …
of risk in terms of numerical probabilities. However, it is well known that individuals have …
Genetic testing and risk interpretation: How do women understand lifetime risk results?
Y Hanoch, T Miron-Shatz… - Judgment and Decision …, 2010 - cambridge.org
Genetic screening for BRCA1 and BRCA2 gives women the opportunity for early detection,
surveillance, and intervention. One key feature of genetic testing and counseling is the …
surveillance, and intervention. One key feature of genetic testing and counseling is the …
Making sense of genetic risk: A qualitative focus-group study of healthy participants in genomic research
JV Johansson, P Segerdahl, UH Ugander… - Patient Education and …, 2018 - Elsevier
Objective It is well known that research participants want to receive genetic risk information
that is about high risks, serious diseases and potential preventive measures. The aim of this …
that is about high risks, serious diseases and potential preventive measures. The aim of this …
[HTML][HTML] Research participants' preferences for receiving genetic risk information: a discrete choice experiment
JV Johansson, S Langenskiöld, P Segerdahl… - Genetics in …, 2019 - Elsevier
Purpose This study aims to determine research participants' preferences for receiving
genetic risk information when participating in a scientific study that uses genome …
genetic risk information when participating in a scientific study that uses genome …
Affective and cognitive attitudes, uncertainty avoidance and intention to obtain genetic testing: An extension of the theory of planned behaviour
K Wolff, K Nordin, W Brun, G Berglund… - Psychology & …, 2011 - Taylor & Francis
To ensure successful implementation of genetic screening and counselling according to
patients best interests, the attitudes and motives of the public are important to consider. The …
patients best interests, the attitudes and motives of the public are important to consider. The …
How risk is perceived, constructed and interpreted by clients in clinical genetics, and the effects on decision making: systematic review
As an individual's understanding of their genetic risk may influence risk management
decisions, it is important to understand the ways in which risk is constructed and interpreted …
decisions, it is important to understand the ways in which risk is constructed and interpreted …
A focus group study of perceptions of genetic risk disclosure in members of the public in Sweden:“I'll phone the five closest ones, but what happens to the other ten?”
C Hawranek, S Hajdarevic, A Rosén - Journal of Personalized Medicine, 2021 - mdpi.com
This study explores perceptions and preferences on receiving genetic risk information about
hereditary cancer risk in members of the Swedish public. We conducted qualitative content …
hereditary cancer risk in members of the Swedish public. We conducted qualitative content …
Concern, pressure and lack of knowledge affect choice of not wanting to know high-risk status
U Swartling, S Eriksson, J Ludvigsson… - European Journal of …, 2007 - nature.com
The 'right not to know'one's genetic status has been increasingly more recognised in ethical
and legal instruments. Yet empirical research is limited, leaving discussion on a theoretical …
and legal instruments. Yet empirical research is limited, leaving discussion on a theoretical …
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