[HTML][HTML] What patients with idiopathic pulmonary fibrosis and caregivers want: filling the gaps with patient reported outcomes and experience measures

M Kalluri, F Luppi, G Ferrara - The American Journal of Medicine, 2020 - Elsevier
Idiopathic pulmonary fibrosis is a progressive disease, with a high mortality within the first 3-
5 years from diagnosis and a poor quality of life mainly because of the burden of symptoms …

Patient expectations and experiences in idiopathic pulmonary fibrosis: implications of patient surveys for improved care

A Belkin, JJ Swigris - Expert Review of Respiratory Medicine, 2014 - Taylor & Francis
For patients with idiopathic pulmonary fibrosis (IPF), prognosis is extremely poor and
treatment options are limited. An improved understanding of the experiences and …

Patients' perspectives on how idiopathic pulmonary fibrosis affects the quality of their lives

JJ Swigris, AL Stewart, MK Gould… - Health and quality of life …, 2005 - Springer
Background Idiopathic pulmonary fibrosis (IPF) is a debilitating lung disease with a survival
of only three to five years from the time of diagnosis. Due to a paucity of studies, large gaps …

Health-related quality of life in idiopathic pulmonary fibrosis: where are we now?

A Belkin, JJ Swigris - Current opinion in pulmonary medicine, 2013 - journals.lww.com
IPF is a devastating disease. Because there is no cure, an improved understanding of how
this disease affects patients' lives is needed. Rigorously developed and carefully …

Optimizing quality of life in patients with idiopathic pulmonary fibrosis

MJG van Manen, JJM Geelhoed… - Therapeutic …, 2017 - journals.sagepub.com
Idiopathic pulmonary fibrosis (IPF) is a devastating, progressive and ultimately fatal lung
disease. The combination of poor prognosis, uncertainty of disease course and severe …

Impact of a disease-management program on symptom burden and health-related quality of life in patients with idiopathic pulmonary fibrosis and their care partners

KO Lindell, E Olshansky, MK Song, TG Zullo… - Heart & Lung, 2010 - Elsevier
BACKGROUND: Patients were recruited from the Dorothy P. and Richard P. Simmons
Center for Interstitial Lung Disease, located within the University of Pittsburgh Medical …

[HTML][HTML] Disease severity and quality of life in patients with idiopathic pulmonary fibrosis: a cross-sectional analysis of the IPF-PRO registry

EC O'Brien, AS Hellkamp, ML Neely, A Swaminathan… - Chest, 2020 - Elsevier
Background Limited data are available on the association between clinically measured
disease severity markers and quality of life (QOL) in idiopathic pulmonary fibrosis (IPF). The …

[HTML][HTML] Palliative care and end of life management in patients with idiopathic pulmonary fibrosis

A Micco, E Carpentieri, A Di Sorbo… - Multidisciplinary …, 2023 - ncbi.nlm.nih.gov
Idiopathic pulmonary fibrosis (IPF) is a chronic disease with an unknown etiology that
causes deterioration of the structure of the lung parenchyma, resulting in a severe and …

[HTML][HTML] Idiopathic pulmonary fibrosis: a review of disease, pharmacological, and nonpharmacological strategies with a focus on symptoms, function, and health …

D Rozenberg, N Sitzer, S Porter, A Weiss… - Journal of Pain and …, 2020 - Elsevier
Despite several advances in treatment, idiopathic pulmonary fibrosis (IPF) remains a
progressive, symptomatic, and terminal disease in patients not suitable for lung …

Patient-reported outcomes in idiopathic pulmonary fibrosis research

JJ Swigris, D Fairclough - Chest, 2012 - Elsevier
Patient-reported outcomes (PROs) include questionnaires or surveys that ask patients for
their perceptions about things like symptoms they are experiencing or quality of life. For …