Adolescent young adult acute lymphoblastic leukemia survivors develop innovative solutions for unmet needs

T Brown, S Ramocan, R Block… - Journal of Adolescent and …, 2023 - liebertpub.com
Adolescent young adult (AYA) cancer survivors continue to have substantive unmet needs.
Literature and insights from a task force of survivors, caregivers, and survivor advocates …

Understanding and improving survivorship care for adolescents and young adults with cancer

H Baird, P Patterson, S Medlow… - Journal of adolescent …, 2019 - liebertpub.com
Purpose: To explore and highlight the opportunities and challenges that underlie the
development of survivorship care for adolescent and young adult cancer. Methods: A …

Adolescent and young adult perspectives on challenges and improvements to cancer survivorship care: how are we doing?

MI Fitch, I Nicoll, G Lockwood, RJ Chan… - Journal of Adolescent …, 2021 - liebertpub.com
Purpose: The purpose was to review main challenges experienced by adolescent and
young adult (AYA) cancer survivors (18–34 years) during transition to survivorship and their …

Advocacy skills training for young adult cancer survivors: the Young Adult Survivors Conference at Camp Māk-a-Dream

BJ Zebrack, KC Oeffinger, P Hou, S Kaplan - Supportive Care in Cancer, 2006 - Springer
Goals of the work This manuscript reports on the design, implementation, and evaluation of
the Young Adult Survivor Conference (YASC)—a 4-day retreat designed to provide an …

[PDF][PDF] Adolescent and young adult perceptions of cancer survivor care and supportive programming

K Wasilewski-Masker, J Gilleland-Marchak… - J Community Support …, 2016 - cdn.mdedge.com
Background Improvements in cancer therapy have led to an increasing number of
adolescent and young adult (AYA) survivors of childhood cancers. Many survivors have …

Implementation of a pilot clinic for pediatric to adult cancer survivorship transitions

AH Jin, PJ Simon, A Clayton, C Benedict… - Journal of Adolescent …, 2023 - liebertpub.com
Childhood cancer survivors are recommended to have lifelong survivorship care, yet many
become disengaged during pediatric to adult care transitions. We implemented a pilot clinic …

Active treatment to survivorship care: A mixed-methods study exploring resource needs and preferences of young adult cancer survivors in transition

L Camp, E Coffman, J Chinthapatla… - Journal of Adolescent …, 2023 - liebertpub.com
Purpose: The purpose of this study was to identify resource needs and preferences of young
adult cancer survivors (YAs) during the transition from active treatment to survivorship care …

A Midwest Stakeholder Evaluation of an Adolescent and Young Adult Cancer Survivor Needs Assessment Survey

C Lee-Miller, KE Montgomery, J Evered… - Journal of Adolescent …, 2024 - liebertpub.com
Purpose: Over 87,000 adolescents and young adults (AYAs) are diagnosed with cancer in
the United States each year. Improvement in outcomes in the AYA population has lagged …

Innovative educational approaches to engage and empower the adolescent and young adult childhood cancer survivor

KT Sadak, C Connor, H DeLuca - Pediatric Blood & Cancer, 2013 - Wiley Online Library
There is a long history of challenges when delivering care to adolescents and young adults
(AYA) with chronic healthcare needs. For the AYA survivor of childhood cancer, these …

We Are Done! Now What? Exploring End of Treatment Needs of Childhood Cancer Survivors and Their Parents

MC Keller, A Needham, E Holden… - Journal of Pediatric …, 2024 - journals.sagepub.com
Background: Increased childhood cancer survival rates have spurred a new body of
research pertaining to the cancer-survivorship continuum. Literature suggests a lack of …