Measuring the impact of participatory research in psychiatry: How the search for epistemic justifications obscures ethical considerations

P Friesen, S Lignou, M Sheehan, I Singh - Health Expectations, 2021 - Wiley Online Library
Context Both within politics and practice, the field of psychiatry is undergoing a significant
transformation, as increasing emphasis is placed on the importance of involving those with …

Participatory research: real or imagined

D Rose - Social Psychiatry and Psychiatric Epidemiology, 2018 - Springer
Background Participatory research has as a central tenet that power relations between
researcher and researched be reduced. In the last 20 years, a substantial literature has …

Raising the bar: a qualitative study of a co-produced model for promoting research partnerships in mental health

J River, B Bellingham, S Isobel, K Gill… - International …, 2023 - journals.sagepub.com
Internationally, lead agencies and consumer movements emphasise the need for high-level
research participation in mental health. However, evidence suggests that people with lived …

Strengthening review and publication of participatory mental health research to promote empowerment and prevent co-optation

M Colder Carras, K Machin, M Brown… - Psychiatric …, 2023 - Am Psychiatric Assoc
As reviewers, editors, and researchers with lived experience of mental health challenges,
addiction, and/or psychosocial distress/disability, the authors have struggled to find an …

Exploring patient and public involvement (PPI) and co-production approaches in mental health research: learning from the PARTNERS2 research programme

Research Involvement and Engagement, 2020 - Springer
Abstract Background Patient and Public Involvement (PPI) in research is a growing field of
work, incorporating experiential knowledge within research processes. Co-production is a …

Patient and public involvement in health research: ethical imperative and/or radical challenge?

D Rose - Journal of health psychology, 2014 - journals.sagepub.com
Patient and public involvement in health research, including mental health research, is
promoted by research funders in England. However, it is poorly conceptualised. One …

Barriers to meaningful participatory mental health services research and priority next steps: Findings from a national survey

N Jones, L Callejas, M Brown… - Psychiatric …, 2023 - Am Psychiatric Assoc
Objective: A growing consensus has emerged regarding the importance of stakeholder
involvement in mental health services research. To identify barriers to and the extent of …

Towards a tinkering participatory research method in mental health

O Tangvald-Pedersen, R Bongaardt - Scandinavian Journal of …, 2017 - Taylor & Francis
The current agreement that evidence-based practice is a merger of research evidence,
clinical expertise and patient preferences has made service user involvement and …

Participatory action research: considerations for ethical review

N Khanlou, E Peter - Social science & medicine, 2005 - Elsevier
This paper addresses the distinctive nature of participatory action research (PAR) in relation
to ethical review requirements. As a framework for conducting research and reducing health …

Service user and carer priorities in a Biomedical Research Centre for mental health

D Robotham, T Wykes, D Rose, L Doughty… - Journal of Mental …, 2016 - Taylor & Francis
The term ''service user involvement in research''implies that service users are stakeholders
in the research process, rather than mere participants. The principles of involvement have …