[HTML][HTML] “It is a whole different life from the life I used to live”: assessing parents' support needs in paediatric palliative care

SM Aoun, R Stegmann, R Deleuil, S Momber… - Children, 2022 - mdpi.com
Aims: This feasibility study aimed to systematically identify and address the support needs of
parents of children with life-limiting illnesses and to assess whether the systematic approach …

Lived experiences of parents caring for a child with a life-limiting condition in Australia: a qualitative study

A Collins, N Hennessy-Anderson… - Palliative …, 2016 - journals.sagepub.com
Background: Experiential studies in paediatric palliative care are needed to enable an
ongoing international agenda which supports the development of responsive family …

Family support services in pediatric palliative care

CA Knapp, N Contro - American Journal of Hospice and …, 2009 - journals.sagepub.com
A fundamental premise of pediatric palliative care is that support is provided not only to the
ill child but to the family as well. In doing so, a number of services may be offered to family …

The profile and support needs of parents in paediatric palliative care: comparing cancer and non-cancer groups

SM Aoun, FJ Gill, MB Phillips… - Palliative Care and …, 2020 - journals.sagepub.com
Background: Parents of children with life-limiting illnesses experience considerable burden
and distress, yet few interventions have targeted their well-being. Objectives: Evaluate the …

The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: a scoping review

FJ Gill, Z Hashem, R Stegmann… - Palliative …, 2021 - journals.sagepub.com
Background: Provision of paediatric palliative care is complex and optimally covers meeting
the individual needs of a heterogenous population of children and their parent caregivers …

Primary pediatric palliative care: psychological and social support for children and families

CD Hirsh, S Friebert - Pediatrics in Review, 2014 - publications.aap.org
Families of children with complex, chronic, and/or life-limiting conditions experience unmet
psychological, emotional, practical, and spiritual needs. Primary care pediatricians may lack …

Building capability in paediatric palliative care and enhancing education through the voice of parents: the Quality of Care Collaborative Australia

LA Donovan, PJ Slater, AM Delaney… - Palliative care and …, 2022 - journals.sagepub.com
Background: The greater proportion of children with a life-limiting condition (LLC) and their
families want to remain at home as much as possible. Building capability in paediatric …

Family support in pediatric palliative care: how are families impacted by their children's illnesses?

CA Knapp, VL Madden, CM Curtis, P Sloyer… - Journal of palliative …, 2010 - liebertpub.com
Context: Palliative care programs have the opportunity to intercede and provide supportive
care to parents whose families have been impacted by their children's illnesses. By …

Exploring the supportive care model as a framework for pediatric palliative care

K Widger, R Steele, K Oberle… - Journal of Hospice & …, 2009 - journals.lww.com
The fit between the Supportive Care Model and existing research on parent perspectives
about pediatric palliative care was explored following a review of the literature. An electronic …

Pediatric palliative care

B Moresco, D Moore - Hospital Practice, 2021 - Taylor & Francis
ABSTRACT Objective/Methods Pediatric Palliative Care (PPC) is a multidisciplinary medical
subspecialty focused on the care of children with serious illnesses and terminal diagnoses …