“I'm not what I used to be”: A qualitative study exploring how young people experience being diagnosed with a chronic illness

S Kirk, D Hinton - Child: care, health and development, 2019 - Wiley Online Library
Background Childhood long‐term conditions are usually diagnosed in infancy or early
childhood. Little is known about the particular experiences and needs of young people who …

It's how I am... it's what I am... it'sa part of who I am: A narrative exploration of the impact of adolescent-onset chronic illness on identity formation in young people

S Wicks, Z Berger, PM Camic - Clinical child psychology and …, 2019 - journals.sagepub.com
In Western society, identity formation is argued to be one of the key developmental tasks of
adolescence. Despite implications for adolescent development, research into chronic illness …

Living with uncertainty and hope: A qualitative study exploring parents' experiences of living with childhood multiple sclerosis

D Hinton, S Kirk - Chronic illness, 2017 - journals.sagepub.com
Background There is growing recognition that multiple sclerosis is a possible, albeit
uncommon, diagnosis in childhood. However, very little is known about the experiences of …

Living with a chronic health condition: Students' health narratives and negotiations of (ill) health at university

G Spencer, S Lewis, M Reid - Health Education Journal, 2018 - journals.sagepub.com
Objective: Increasing numbers of young people live with a chronic health condition. Much
research to date has explored young people's self-management of their illness and related …

Adolescents' experiences on coping with parental multiple sclerosis: a grounded theory study

T Mauseth, E Hjälmhult - Journal of clinical nursing, 2016 - Wiley Online Library
Aims and objectives To gain insight into what adolescents see as their main concern when
having parents who suffer from multiple sclerosis, and develop concepts and theory that may …

The meanings young people assign to living with mental illness and their experiences in managing their health and lives: a systematic review of qualitative evidence

RL Woodgate, C Sigurdson, L Demczuk… - JBI Evidence …, 2017 - journals.lww.com
Background: It is estimated that less than 25% of young people in need of treatment for
mental illness receive specialized services, and even fewer receive a diagnosis by their …

Adolescents with chronic illness and the transition to self-management: A systematic review

MF Lerch, SE Thrane - Journal of Adolescence, 2019 - Elsevier
Introduction Chronic illness effects one in ten adolescents worldwide. Adolescence involves
a desire for autonomy from parental control and the necessity to transition care from parent …

'Rule your condition, don't let it rule you': young adults' sense of mastery in their accounts of growing up with a chronic illness

J Heaton, U Räisänen, M Salinas - Sociology of health & illness, 2016 - Wiley Online Library
Poor control of chronic illness is often attributed to patients' non‐adherence to medical
advice and treatment. Policy and practice has traditionally focused on improving adherence …

How do adolescents adjust to their parent's multiple sclerosis?: An interview study

A Bogosian, R Moss‐Morris, FL Bishop… - British journal of …, 2011 - Wiley Online Library
Objectives. The aim of this study was to explore how adolescents with a parent with multiple
sclerosis (MS) adjust to their parents' illness. Design. We used an inductive qualitative …

Understanding young peoples' experience of chronic illness: a systematic review

A Venning, J Eliott, A Wilson, L Kettler - JBI Evidence Synthesis, 2008 - journals.lww.com
Objective It has been reported that the diagnosis of a chronic illness increases a child's
susceptibility to future mental health problems. Accordingly, the objective of the current …