The Physical Health of Caregivers of Children With Life-Limiting Conditions: A Systematic
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Introduction The purpose of this study was to assess health-related quality of life (HRQL)
when managing severe, chronic respiratory insufficiency (CRI) at home. Methods Families …

CONTEXT. The number of parents who care for a chronically ill child is increasing. Because
of advances in medical care, parental caring tasks are changing. A detailed description of …

Because families tend to minimize their psychosocial problems and clinicians often
underestimate how hard it is for children and families to live with chronic illness, this article …

Objectives: To examine and compare child and parent or guardian physical and mental
health outcomes in families with children with special health care needs who have medically …

This paper describes well-being (health status/quality of life, healthcare utilization,
employment, and financial status) of parental caregivers of children with activity limitations …

Background. Caring for any child involves considerable resources, but the demands for
these resources are often increased when caring for a child with a disability. These …

Objective: Decisions to forgo life support from critically ill children are commonly faced by
parents and physicians. Previous research regarding parents' perspectives on the decision …

Purpose: The purpose of this systematic review is to identify quality-of-life issues that affect
participation in age-appropriate activities in chronically ill children, as reported by the …

Background: Caregivers for children with complex chronic illnesses may experience
emotional and physical strain, especially as concerns attention overload and the …