Face and content validity, acceptability, and feasibility of the adapted version of the children's palliative outcome scale: a qualitative pilot study

M Friedel, B Brichard, S Boonen, C Tonon… - Journal of palliative …, 2021 - liebertpub.com
Objective: To assess the face and content validity, acceptability and feasibility of a French
version of the Children's Palliative Outcome Scale (CPOS). Background: Instruments in …

Cognitive testing of the Children's Palliative Outcome Scale (C-POS) with children, young people and their parents/carers

L Coombes, D Braybrook, D Harðardóttir… - Palliative …, 2024 - journals.sagepub.com
Background: The Children's Palliative Outcome Scale (C-POS) is being developed using
best methodological guidance on outcome measure development, This recommends …

Health-related quality-of-life outcome measures in paediatric palliative care: a systematic review of psychometric properties and feasibility of use

LH Coombes, T Wiseman, G Lucas… - Palliative …, 2016 - journals.sagepub.com
Background: The number of children worldwide requiring palliative care services is
increasing due to advances in medical care and technology. The use of outcome measures …

Factor structure of the Quality of Children's Palliative Care Instrument (QCPCI) when completed by parents of children with cancer

K Widger, S Brennenstuhl, J Duc, A Tourangeau… - BMC Palliative Care, 2019 - Springer
Background Currently available indicators of quality pediatric palliative care tend to focus on
care provided during the end-of-life period rather than care provided throughout the disease …

Outcome measurement in paediatric palliative care: lessons from the past and future developments

J Downing, E Namisango, R Harding - 2018 - nru.uncst.go.ug
The need for paediatric palliative care (PPC) globally is great yet there is limited evidence of
the quality or outcomes of the care provided. The lack of an outcome measure for PPC has …

Pediatric palliative care: insights into assessment tools and review instruments

S Papa, A Mercante, L Giacomelli, F Benini - Children, 2023 - mdpi.com
The proper assessment of needs and outcomes in pediatric palliative care (PPC) is
imperative to ensure the best possible service to patients and families. However, given the …

Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub …

E Namisango, K Bristowe, FEM Murtagh… - Palliative …, 2022 - journals.sagepub.com
Background: The Children's Palliative Care Outcome Scale (C-POS) is the first measure
developed for children with life-limiting and-threatening illness. It is essential to determine …

The development of an instrument that can identify children with palliative care needs: the Paediatric Palliative Screening Scale (PaPaS Scale): a qualitative study …

E Bergstraesser, RD Hain, JL Pereira - BMC palliative care, 2013 - Springer
Background The introduction of paediatric palliative care and referral to specialised teams
still occurs late in the illness trajectory of children with life-limiting diseases. The aim of this …

Evaluating quality of life in pediatric palliative care: a cross-sectional analysis of children's and parents' perspectives

D Toro-Pérez, JT Limonero, M Guillen… - European Journal of …, 2024 - Springer
The patient's perspective is an essential component of understanding the individual
experience of suffering in children with palliative needs, but it is a perspective that is often …

Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children's …

L Coombes, D Harðardóttir, D Braybrook… - Palliative …, 2023 - journals.sagepub.com
Background: There is no validated outcome measure for use in children's palliative care
outside sub-Saharan Africa. Stakeholders must be involved in the development of such …