Effectiveness of a pediatric palliative home care team as experienced by parents and health care professionals

R Vollenbroich, A Duroux, M Grasser… - Journal of palliative …, 2012 - liebertpub.com
Objectives: Little data are available on palliative home care for children. The objective of this
study was to evaluate the effectiveness of a specialized pediatric palliative home care team …

Specialized pediatric palliative home care: a prospective evaluation

G Groh, GD Borasio, C Nickolay… - Journal of palliative …, 2013 - liebertpub.com
Abstract Objectives: In Germany since 2007 children with advanced life-limiting diseases are
eligible for Pediatric Palliative Home Care (PPHC), which is provided by newly established …

Parental experiences with a paediatric palliative care team: a qualitative study

LM Verberne… - Palliative …, 2017 - journals.sagepub.com
Background: Parents of children with a life-limiting disease have to rely on themselves at
home while adequate paediatric palliative care is lacking. In several countries, paediatric …

An evaluation of a home palliative care programme for children

T Dangel, S Fowler‐Kerry, M Karwacki… - Ambulatory Child …, 2000 - Wiley Online Library
Objective To measure the quality of a paediatric hospice home care programme and to
assess the needs and concerns, both met and unmet, of parents who received hospice …

End-of-life care for children enrolled in a community-based pediatric palliative care program

LM Niswander, P Cromwell, J Chirico… - Journal of palliative …, 2014 - liebertpub.com
Background: Despite recent strides in pediatric palliative care (PPC), there are few
published data on community-based care of dying children. Objective: Our aim was to …

Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach

JY Boyden, C Feudtner, JA Deatrick, K Widger… - BMC palliative …, 2021 - Springer
Background Many children with serious illnesses are receiving palliative and end-of-life care
from pediatric palliative and hospice care teams at home (PPHC@ Home). Despite the …

[HTML][HTML] Concerns of parents with children receiving home-based pediatric palliative care

PR Tutelman, KG Lipak, A Adewumi, MZ Fults… - Journal of pain and …, 2021 - Elsevier
Context Caring for a child who will die from a life-limiting illness is one of the most difficult
experiences a parent may face. Pediatric palliative care (PPC) has grown as a specialty …

Parents' experiences of paediatric palliative care in the community healthcare system: a qualitative study

SA Rud, E Skagestad… - Palliative Care and …, 2023 - journals.sagepub.com
Background: Having a child with a life-limiting illness is a situation that is relatively rare and
represents a multidimensional burden on the family. Paediatric palliative care (PPC) aims to …

[HTML][HTML] What do parents value regarding pediatric palliative and hospice care in the home setting?

JY Boyden, M Ersek, JA Deatrick, K Widger… - Journal of pain and …, 2021 - Elsevier
Context Children with life-shortening serious illnesses and medically-complex care needs
are often cared for by their families at home. Little, however, is known about what aspects of …

Listening to parents: The role of symptom perception in pediatric palliative home care

R Vollenbroich, GD Borasio, A Duroux… - … & supportive care, 2016 - cambridge.org
Objective: This study analyzes symptom perception by parents and healthcare professionals
and the quality of symptom management in a pediatric palliative home care setting and …