Disorders of consciousness rehabilitation: Ethical dimensions and epistemic dilemmas

MJ Young - Physical Medicine and Rehabilitation Clinics, 2024 - pmr.theclinics.com
Patients with disorders of consciousness (DoC) who survive to discharge following severe
brain injury can face profoundly complex medical, ethical, and psychosocial challenges …

Neuroethics across the disorders of consciousness care continuum

MJ Young, A Peterson - Seminars in Neurology, 2022 - thieme-connect.com
This review provides an ethical analysis of disorders of consciousness (DoC) along the care
continuum, from preinjury to injury, acute care to subacute care and early rehabilitation, and …

Ethics along the continuum of research involving persons with disorders of consciousness

A Lewis, MJ Young, B Rohaut, RJ Jox, J Claassen… - Neurocritical care, 2023 - Springer
Interest in disorders of consciousness (DoC) has grown substantially over the past decade
and has illuminated the importance of improving understanding of DoC biology; care needs …

Equity in clinical care and research involving persons with disorders of consciousness

MA Rubin, A Lewis, CJ Creutzfeldt, GS Shrestha… - Neurocritical Care, 2024 - Springer
People with disorders of consciousness (DoC) are characteristically unable to
synchronously participate in decision-making about clinical care or research. The inability to …

The neuroethics of disorders of consciousness: a brief history of evolving ideas

MJ Young, YG Bodien, JT Giacino, JJ Fins, RD Truog… - Brain, 2021 - academic.oup.com
Neuroethical questions raised by recent advances in the diagnosis and treatment of
disorders of consciousness are rapidly expanding, increasingly relevant and yet …

Neuroethics and disorders of consciousness: a pragmatic approach to neuropalliative care

JJ Fins - The Neurology of Conciousness, 2016 - Elsevier
Unraveling the mysteries of consciousness, lost and regained, and perhaps even
intervening so as to prompt recovery are advances for which neither the clinical nor the lay …

Disorders of consciousness, past, present, and future

JJ Fins - Cambridge Quarterly of Healthcare Ethics, 2019 - cambridge.org
This paper, presented as the 2019 Cambridge Quarterly Neuroethics Network Charcot
Lecture, traces the nosology of disorders of consciousness in light of 2018 practice …

Neuroethics and disorders of consciousness: discerning brain states in clinical practice and research

JJ Fins - AMA journal of ethics, 2016 - journalofethics.ama-assn.org
Decisions about end-of-life care and participation in clinical research for patients with
disorders of consciousness begin with diagnostic discernment. Accurately distinguishing …

How contextual and relational aspects shape the perspective of healthcare providers on decision making for patients with disorders of consciousness: A qualitative …

C Rodrigue, R Riopelle, JL Bernat… - Narrative inquiry in …, 2013 - muse.jhu.edu
Disorders of consciousness (DOC) are a family of related neurological syndromes
characterized by deficits of varying degrees of wakefulness (eg, sleep–wake cycles and …

Limitation of life sustaining therapy in disorders of consciousness: ethics and practice

IA Lissak, MJ Young - Brain, 2024 - academic.oup.com
Clinical conversations surrounding the continuation or limitation of life-sustaining therapies
(LLST) are both challenging and tragically necessary for patients with disorders of …